Community Forum Archive
The Epilepsy Community Forums are closed, and the information is archived. The content in this section may not be current or apply to all situations. In addition, forum questions and responses include information and content that has been generated by epilepsy community members. This content is not moderated. The information on these pages should not be substituted for medical advice from a healthcare provider. Experiences with epilepsy can vary greatly on an individual basis. Please contact your doctor or medical team if you have any questions about your situation. For more information, learn about epilepsy or visit our resources section.
Simple partial seizures?
Mon, 11/23/2015 - 16:23Hello all,
About 8 months ago, I had my first grand mal seizure. This was after years of having complex partial seizures without knowing it. After the grand mal, I had an EEG, MRI, and CT Scan. The EEG came back abnormal and I was diagnosed with TLE. Since then, I've been on 500 mg 2x per day of Keppra. The Keppra seems to be working well, but lately I've noticed some things that make me wonder if I'm having simple partial seizures and maybe need my med dosage increased. Here are some of my symptoms:
- Daily headache
- Twitching in arms, legs, back, and buttocks
- Frequently can't "find the right word" when speaking
- Unable to recall some short term memories / Things that feel like they just happened recently, actually happened some time further back
- Slightly dizzy
- Constant pain on bridge of nose
- Taking long naps during the day, even though I don't feel very tired
- Somtimes seeing black dots
Any input is greatly appreciated. Thank you.
Wow your story sounds
Submitted by gchatt10 on Mon, 2015-11-23 - 16:35
Wow your story sounds amazingly similar....I am 28 year old male. 10 years of simple partial seizures (auras/deja vus), un-diagnosed. First tonic-clonic Aug 5, 2015. Subsequent EEG and MRI confirm Temporal Lobe Epilepsy, possible Hippocampal Sclerosis.Put me on Lamictal first but had SJS. Then started me on 500mg Keppra and now up to 2000mg daily keppra.I also have:-Frequently can't "find the right word" when speaking-Slightly dizzy-Taking long naps during the day, even though I don't feel very tired-Somtimes seeing black dots-Unable to recall some short term memories / Things that feel like they just happened recently, actually happened some time further backUnfortunately I am still having lots of simple partials with the Keppra. These side-effects should be expected with Keppra. My question is, do we really need it? Years of simple partials and a single tonic-clonic and now we need medication with heavy side effects everyday? I don't like that solution.TLE is the most common form of epilepsy that could be a candidate for surgery. Have your docs look down that road.