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Simple partial seizures?

Mon, 11/23/2015 - 16:23

Hello all,

About 8 months ago, I had my first grand mal seizure. This was after years of having complex partial seizures without knowing it. After the grand mal, I had an EEG, MRI, and CT Scan. The EEG came back abnormal and I was diagnosed with TLE. Since then, I've been on 500 mg 2x per day of Keppra. The Keppra seems to be working well, but lately I've noticed some things that make me wonder if I'm having simple partial seizures and maybe need my med dosage increased. Here are some of my symptoms:

- Daily headache

- Twitching in arms, legs, back, and buttocks

- Frequently can't "find the right word" when speaking

- Unable to recall some short term memories / Things that feel like they just happened recently, actually happened some time further back

- Slightly dizzy

- Constant pain on bridge of nose

- Taking long naps during the day, even though I don't feel very tired

- Somtimes seeing black dots

 

Any input is greatly appreciated. Thank you.

 

Comments

Wow your story sounds

Submitted by gchatt10 on Mon, 2015-11-23 - 16:35
Wow your story sounds amazingly similar....I am 28 year old male. 10 years of simple partial seizures (auras/deja vus), un-diagnosed. First tonic-clonic Aug 5, 2015. Subsequent EEG and MRI confirm Temporal Lobe Epilepsy, possible Hippocampal Sclerosis.Put me on Lamictal first but had SJS. Then started me on 500mg Keppra and now up to 2000mg daily keppra.I also have:-Frequently can't "find the right word" when speaking-Slightly dizzy-Taking long naps during the day, even though I don't feel very tired-Somtimes seeing black dots-Unable to recall some short term memories / Things that feel like they just happened recently, actually happened some time further backUnfortunately I am still having lots of simple partials with the Keppra. These side-effects should be expected with Keppra. My question is, do we really need it? Years of simple partials and a single tonic-clonic and now we need medication with heavy side effects everyday? I don't like that solution.TLE is the most common form of epilepsy that could be a candidate for surgery. Have your docs look down that road. 

Welcome to the world of

Submitted by gchatt10 on Mon, 2015-11-23 - 17:12
Welcome to the world of modern medicine! Sit back and see what happens....

Many of the things you posted

Submitted by just_joe on Tue, 2015-11-24 - 16:44
Many of the things you posted could be seizures or parts of seizures. If yo uhad some head aches when first taking kepprs and they stopped then it might not be a side effect of the keppra. Generally side effects last until your body gets used to the medication which is generally about 6-8 weeks.Now I also read your post to the answer Amy jo gave you. If the ehad aches are on one side or the other then those are parts of or are seizures. Memory issues could be damage because of the seizures or the emds at times. when first on meds I lost my train of thought and at times I still do so I know at times I have to search for the woed I know is there it just isn't comming up. The keppra have helped me resolve some of that.If what is happening now is different then what it was 8 months ago then by all means do call your neurologist and discuss this with him/her. Your dosage may need to be increased some. I say that because you are on a low dosage. I take the maximum dosage which is 6 - 750mg tabs a day. The awy to get results and get your seizures controlled is to ask questions. Those questions can be in here like you posted. But they should also be some you ask your neurologist..For every question Doc asks me I have at least one for him. Keeping a good relationship with him is also good since many questions can be answered in a call. I have even had dosage changed done in a call. I would also suggest you get the My Epilepsy Diary. Watch the video and use iot. If you give your neurologist permission he can bring it up and look at everything including the graphs along with everything else and it can give him ideas about dosage changes. medication changes if needed and possiable procedures. I hope this  helps Joe

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