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Sibling - First Event?
Mon, 09/21/2015 - 16:20Hi everyone,
This is my first time posting on here. I'm 24, was diagnosed with generalized seizures when I was 11, and finally figured out it was juvenile myoclonic seizures around 2-3 years ago. I have been seizure free for only a few months at this point, as my seizures are highly affected by stress & sleep, and I live in New York City. :)
Anyway, my younger sister (19 y/o) called me this morning and said she felt like she "got hit by a truck and then ran 2 marathons", which is sometimes how I describe my feelings after I have a seizure. She continued to tell me that she had "a really vivid dream" that she was going to the bathroom, but when she bent down to pull up her pants, she couldn't do it, and started stumbling, walking out of the bathroom and into the walls, and then fell and had a seizure. She is sure that she was asleep that whole time, but she is feeling today what sounds like an actual "seizure hangover" (as I call it)...she has never in her life had any signs of seizure disorder, but I do know that JME is genetic. My younger male cousin has it as well.
Does anyone have any similar stories or thoughts? Does this sound like a nocturnal seizure? My neurologist suggested she go and get an EEG, but I am very worried...she is away at college...
thanks for any replies.
Alicia, 24
NYC