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Sequence of absence seizures all day long (need help)

Tue, 01/17/2017 - 12:03
Hi, I am writing a new subject here as I could not find any other subject discussing and describing similar symptoms to mine. When I was a child, I used to have absence epilepsy seizures that would last for 3-5 seconds could of times a day or not at all for days. I used to take Epilim for ages, then stopped it (which did not affect me much then) as I felt it is not needed or not helpful. However, when I became about 20 years old, the type of seizures has changed and ever since I started to have absence seizures in a sequence for a whole day which I will call here (day-seizure). For example, seizures that are 1-3 seconds keep happening once, twice or even more in a single minute. The seizures get more observable when I am trying to think about something, or having a conversation with someone, making a phone call, Iwould stop in the middle of the conversation and forget what I was saying and need couple of seconds to recover. Then it strikes me again making it very hard to concentrate on a conversation and other people around me notice clearly that I am not alright. I get one of the (day-seizure) once or twice every month, and sometimes not at all for a couple of weeks. They get triggered if I am having a hangover ( doesn't happen very often) or if I get less sleep than I normally do. Thus, I try to keep controlling my sleep and to minimize alcohol intake. The good thing is that when these seizures happen, I would notice it from when I wake up. So they don't surprise me. And even when they happen I still manage to do the main tasks of my work (teacher) but with less efficiency or with noticeable absence seizures every now and then. The sequence of seizures will stop gradually almost by the end of the day (7:00 pm), which means that I am unable to work, talk, function properly for moos of the day with gradual improvement throughout the day. Currently I am taking no medications at all, I have visited Northampton's hospital epilepsy clinic for consultation after a referral by my GP. But talking to the neurologist there is literally like talking to a mirror. He never explain anything to me, he seems as he knows nothing about the subject, he ran a brain scan that was normal, and an EEG that showed some minor epileptic signs (his words not mine), but never explained anything to me. Not even what is the name of the thing that I am suffering from and not any detail about nothing. He suggested that I start taking Epilim again with a very low dose and see what happens but he said this is only a suggestion and not compulsory as these (day-seizures) happen only once or twice a month. I am really looking for someone who can tell me what is the name of the symptoms that I am having. A sequence of absence seizures for an average of two days a month. And if there is any medication, remedies, action that I could do when having these days to make them less harsh. I would rather prefer to do something when they happen rather than taking a medication everyday and facing the side effects etc. I have made some self trials myself and found it very helpful if I sleep for couple of hours, drink a pint of beer, these reduce or eliminate the seizures. However, if I try a physical activity, or a cup of coffee, this will worsen everything. Could anyone please advise me on the name of my symptoms or any suggestions? I am happy to answer all your quesitons. Thank you very much George

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