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Seizures from a tumor. My story.

Sun, 12/27/2015 - 15:55

Hello all. Thought I would share my experience with seizures.
I'm now on my way to recovery, and finally living my life after the last 3 years with con-convulsive seizures caused by a pesky, but thankfully benign tumor in my right amygdala.
My symptoms at first didn't feel like seizures. Sure enough every doctor I saw attributed them to something else wrong with me.+
My symptoms were odd; I would feel heaviness on the left side of my body; I couldn't lift my foot off the ground, my hand felt numb. My heart felt like it was going to jump out my chest. I would feel very dizzy and become flushed. I felt weak; like I was going to pass out. I would occasionally have a deja-vu sensation. As fast as these symptoms came on, they would dissapear, with some of these "episodes lasting only a few seconds, but some lasting as long as 30 seconds. I was always fully conscious and able to talk during my "episodes", which made them even scarier. On good days, I would have one or two short episodes a day. On bad days; as many as 10 episodes in an hour; which were exhausting. I attributed these episodes to stress, and waited for them to pass.
When decided I seek out medical help 3 months after these episodes started, the doctor said I had anemia. I was put on iron pills. But after 5 months of iron, my symptoms never resolved. A chance appointment with a neurologist changed my life. He decided to schedule an MRI to rule out conditions. Sure enough, 1 day after my MRI, I got the scariest phone call of my life: my neurologist telling me I had a tumor in my right amygdala. He didn't know if it was malignant or not, but knew all these symptoms I had up until then were con-convulsive seizures. He scheduled a neurosurgery appoinment quickly.

It was decided that I would be put on Keppra and wait for neurosurgery to decide their intervention. The keppra worked wonders for me. My seizures stopped entirely. But the neurosurgeon wanted my seizures to be examined more. I was then admitted to the hospital for 5 days with constant EEG monitoring and was taken off the keppra. Sure enough, my seizures started again, and EEG showed that the seizure activity was all from my temporal lobe. It was decided to remove my right amygdala and hippocampus; as it was affected by the tumor. A second MRI led the neurosurgeon to confidently say my tumor was benign.

4 months after the diagnosis of a temporal lobe tumor, I had a right craniotomy to remove my amygdala and hippocampus that the tumor decided to make as it's home. It's currently been 2 weeks since I've had my surgery, and I am slowly, but surely recovering and getting ready to finally live my life again. It's a slow, but steady progress; there are good times, and yes, some bad times.

Feel free to ask quesions; I'll answer to the best of my abilities.

Hope all is well with you all! Sammy.

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