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Seizures Returning 4 Years Post Op??

Fri, 08/18/2006 - 22:04
Question: I need other opinions on this- 4 years ago I had a RTLobectomy to remove a benign tumor and seizure focus. Since surgery I have been seizure free until about 6 months ago when I started having episodes of deja vu accompanied by what I call "funky vision" when things just don't look right (a lot like when you've been drinking). I also frequently see spots in my vision (usually black spots but sometimes white or 'clear'). I'm concerned that these are simple partial seizures (aura's) returning. What do you think? I've been debating about going to the neuro for a while because I know she will insist on an MRI and an EEG and quite frankly I don't think either will show anything and I don't want to spend the money on them. My last EEG was a couple of years ago when I thought perhaps I was having simple partial seizures but the EEG showed nothing (not unusual though to have those results). I'm pretty positive there isn't a new tumor growing, but I can't help but feel that these are seizures again (milder than before but still seizures). Do you think this warrants a trip to the neuro or is it something I should just ignore? My mom makes a good point that it might be best to go earlier rather than later in case I need to go on meds again (perhaps keeping them from progressing in severity like they did before).... ?????? stef

Comments

Re: Seizures Returning 4 Years Post Op??

Submitted by ladybug on Sat, 2006-08-19 - 02:25
Hi Stefie, If I were you, I would call the neuro. It might be a case that the tumor grew back? It is better to be safe than sorry. Also, I DO agree with you mom. If you were my daughter, I would be telling you that very same thing. :) Good luck! Keri

Re: Seizures Returning 4 Years Post Op??

Submitted by mommy2kyra on Sat, 2006-08-19 - 10:39
Hi Stef, Yes, I'd agree with your mom. The deja vu and funky vision sounds suspicious to me. Better to start treating things now before it gets worse. I wish the best of luck to you! Heather :)

Re: Re: Seizures Returning 4 Years Post Op??

Submitted by stefie on Mon, 2006-08-21 - 22:01
Hi Heather & Keri- Thanks for the replies. I know you're both right (my mom too). I should go, I just really don't want to go back into debt for the tests (still haven't finished paying off the last ones (and yes I do have insurance). As for the tumor coming back it's very unlikely. My particular tumor was a DNET (benign and very rare), and VERY slow growing. I'm more concerned about kindling or something to that effect. I think maybe I will monitor it a while longer and then call. I need to be sure of what I'm going to tell the neuro too (I don't want her to think I'm just wasting her time), see if it's repeated enough to be concerned about... I tried explaining it to my boss today. There are some moments where I feel like I've been drinking and I definitely haven't. Matter of fact when my husband and I were on vacation last month there were times I would be driving and then pull over and make him drive because I really didn't feel right (that foggy, buzzed feeling) with no explanation.. Do you ever get that feeling? stef

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