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seizures during sleep! help :(

Thu, 06/26/2014 - 16:52

im writing this in hopes that someone else has similar seizures and can offer some advice!  im 24 and about 6 years ago i took ecstacy for the first time(i know its bad but i was young and stupid) i took it twice qnd the second time i took it, i went to sleep and woke up with my friends freaking out telling me i had a seizure. after that, i started having them every couple months but only in my sleep. i went to a neurologist and he put me on lamictal and said they were partial complex seizures. i went a year without having one and then had a very bad one in my sleep and had to go to the ER. i start out having the seizure in my sleep and then actually get up and "sleep walk" and stumble around the house with no idea what im doing! i finally come out of it and feel very confused. its been 2 years since i had one and a couple weeks ago i had one. i just dont understand because i had lots of sleep and wasnt stressed about anything and hadnt taken any kind of drug so i was wondering if anyone has had this hppen to them? its very scary and drs tell me they dont think the ecstasy caused these to happen but i know it did!

Comments

Hello. I just read your post.

Submitted by Anonymous on Fri, 2014-07-04 - 23:30
Hello. I just read your post. I wanted to say I understand what you are going through. I too started to have grand mal seizures only in my sleep starting 6 yrs. ago. I had all the tests done, CT Scan, MRI w/wo contrast, and an EEG. All tests came back negative showing no seizure activity. I was put on Dilantin 100 mg 2xaday, then it was changed to Phenytoin 100 mg 2xaday, then it was changed to Tegretol XR 1 tab every 12 hours. All three meds stopped the grand mal seizures, but they made me have stomach nausea everyday and some times I would throw up. Plus I was having headaches daily and then memory loss. I also had severe anger problems from the Tegretol. I stopped taking it and started taking the Phenytoin again. I took the Phenytoin for a year and a half, but decided to get off the med. So I weaned myself off the med over a 3 month period. I just could not live with the symptoms anymore of being nauseated all the time, throwing up every day, having headaches every day plus the memory loss. Also my personality was not good being on the seiuzure meds. Since I stopped taking my seizure medication, I have felt much better. My mind is more clearer, my personality is better. I still have nausea almost every day, I still have headaches almost every day as well, and I suffer from memory loss from the meds. I have 1 maybe 2 seizures still only in my sleep. I never once had a seizure while awake, only when sleeping. I think that is good and I feel fortunate that the seizures only happen during sleep. But I would rather have seizures then take the meds to stop them. To me, the meds are worse than the seizures themselves. Although I hate waking up and realizing I had a seizure. I feel so terrible. Bad headache, stomach nausea, confusion, weak legs, and just really tired. I have to spend the whole day in bed to recover. Maybe some time I will go back to the dr. and try a different seizure med. but a part of me is scared because I don't want to suffer bad side effects. I also don't want to have stomach nausea any more worse then I already suffer from. I have taken 3 seizure meds to stop the seizures, and ALL seizure meds caused stomach nausea so that tells me any seizure medication a dr. puts me on might cause stomach nausea for me, which I do not want. When and if marijuana gets legal in the state I live in, I will be signing up for it. Good day.

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