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Seizures During Sleep

Wed, 02/11/2009 - 22:16

 

Hi, I'm new to this site. I have most of my seizures in my sleep or in the morning after waking up.. my last one being two days ago. It seems that either illicit drugs, alcohol or lack of sleep bring most of my seizures on, and I'm working on getting them under control by giving up these things rather than taking my medication, I find the medication Valpro has some bad side effects.

I think my last seizure  was a big one becauseI have been a scattered mess since then, I've slept for two days straight now and I have yet to leave the house. I can't think straight so if this doesn't make any sense I hope u understand why. My whole body is aching and my memory is slowly returning.

Anyways I'm almost 25 and I was diagnosed about 2 1/2 years ago.. does anybody else experience sleep related seizures?.. I truly believe if I can get enough sleep I will  get my epiliepsy under control.

Thanks for any of your comments.

Comments

Re: Seizures During Sleep

Submitted by jderry on Wed, 2009-02-11 - 23:35
my doc gave me a low dose of adavan [ lorazepam 1mg] and I make sure I eat something before i go to bed no sweets helps so far

Re: Seizures During Sleep

Submitted by skillefer on Thu, 2009-02-12 - 01:10
Mornin, do NOT quit taking meds abruptly!  This can cause you to have more and more violent seizures.  Call your doctor immediately and talk to them about possibly changing your meds...or adding a complimentary therapy of some sort and weaning off the drugs slowly.  Do NOT just quit taking your meds.  As you are having seizures primarily in your sleep,  you are at a higher risk for SUDEP. SUDEP is Sudden Unexpected Death in Epilepsy.  This is the primary suspected cause of death for John Travolta's son among other epilepsy forums.  Please, be careful and call your doctor.

Re: Seizures During Sleep

Submitted by Morning Sunshine on Thu, 2009-02-12 - 09:47
F@*# never heard of SUDEP before but now your scaring me :o

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