Here is my background (important for the question)-
I was diagnosed with complex seizures about a 1.5 years ago. At that time I was having many per week. I was started on Lamictal which I took for about 8 months- it controlled my seizures very well. I stopped taking my meds because of repeated kidney issues (which my neuro refused to acknowledge were related). I stopped seeing the neuro and stopped taking the Lamictal.
At first I did just fine without my meds. Two months into being med free I started having the complex seizures again. I figured that the seizures were less disturbing than the meds...besides I had a strong aura so I felt safe enough. Then the grand mals came out of the blue.
I have NEVER experience anything more horrible. My entire body hurt for days, and my eyes ached so bad. I felt like I was in a fog for a day or two. I still didn't go to the neuro at first..I knew she would report me and I was only having them at night when my husband was home. He isn't so good at describing things. At first he was saying that I had a seizure and then was twitchy for about 30 minutes (normal for me). Turns out that I was having a few GM in a row.
After about two months I realized that I was having trouble finding simple everyday words- spelling became horrible. My mind wasn't crisp anymore...even simple tasks were more difficult. I felt like I had list 30+ points on my IQ. I ended up in the ER after my husband refused to take the rages that followed the seizures for a day or two after...I went from nice to a raging bit%h.
My new neuro started the Lamictal again. She upping the meds up to 400 mg and I am feeling pretty good. I let her know my concerns, my mental clarity, and crispness is still gone. I feel stupid now. She said that I probably have brain damage. She said that happens when people stop meds and seizures generalize. I asked if over time it will get better. All she would say is that if I stopped the seizures it wouldn't get worse.
Anyone else with mild brain damage from seizures? If so can you tell me why, and if it has gotten better or worse with time?