Seizures

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hello i have had Epilepsy from 1967 i have Focal & Grand mal seizures every one that i have met that has had Epilepsy i have ask when thay have a seizure if thay recall every thing when having one. all have told me the same thing that thay black out and do not recall any thing when thay have a seizures. when i have my seizures im aware of every thing that is happing to me i recall all of it and when i ask my M.D. about if thare was any one els that recalled every thing or did everyone els just black out he could not tell me. thats why im here i can not think im the only one that recalls what is happing as i have them?

if you or you know some one that recalls what is happing to them or you i would like to know so i do not think im the only one that has to live tho that hell.

thank you all

Comments

Hi Dano Oh you are not alone

Submitted by Anonymous on Tue, 2014-04-22 - 14:43

Hi Dano Oh you are not alone there are many people who know what is happeing in their seizures. There are seizures where the person loses conciousness and one of those is grand mal. I was diagnosed with grand mal,pettite mal and focal motor epilepsy. That diagnosis was done back in the 1960's and back then there were no types. I can also tell you that grand mal is the worst. Pettite mal is the slightest. Focal seizures are different because they are started in one area of the brain and if they do not generalize they stay slight. Mine started with a weird feeling in my right hand. There were times when it would start to rise up. If it stopped I was fine and the seizure would subside. There were times when focal seizures would generalize. They all start in one area of the brain. Mine start in the left lobe area that controls my right hand. If it generalizes then the seizure would get larger and I could convulse. Those seizures looked like grand mal and were just as bad but I never lost conciousness. I could see, hear and understood what everybody was saying. I just could not control what was happening. I saw the fear in friends faces, I heard what they said and many times what was said was not what the person meant it was the fear at that time they were making a comment on.I know when I am having a seizure whether they are partial.complex partial or any of the other seizures I have. I also know how long they last and can determine how long it takes to focus (get back to normal) If you are talking to your MD a general practioner does not specialize in epilepsy so they might not know about many different kinds of seizures and yes there are many. Check with your neurologist and he would probably tell you things like I have listed above. I'll put it this way. I worked in a call center and delt with people on the phone daily. I could be on the phone and have a focal seizure which effected my hand and still complete the call. the customer was satisfied and was happy with the outcome. Once the call was over I unplugged my headset becasue I needed to type in the information. The project manager had listened to the call and had not seen me typing any information as is required. He came out and I was typing and he read what was typed. I have put the informatioon in as required and had the solution resolved just as I had spoken to the customer. So not only can a person remember what happened they can also remember what is said and done and input that information into a customers file. Please discuss this with your neurologist because he can tell you which seizures you have that you will not lose conciousness. The loss of conciousness is when you have no memory of what happened. I hope this helps Joe

Hi Dano Oh you are not alone there are many people who know what is happeing in their seizures. There are seizures where the person loses conciousness and one of those is grand mal.  I was diagnosed with grand mal,pettite mal and focal motor epilepsy. That diagnosis was done back in the 1960's and back then there were no types. I can also tell you that grand mal is the worst. Pettite mal is the slightest. Focal seizures are different because they are started in one area of the brain and if they do not generalize they stay slight. Mine started with a weird feeling in my right hand. There were times when it would start to rise up. If it stopped I was fine and the seizure would subside. There were times when focal seizures would generalize. They all start in one area of the brain. Mine start in the left lobe area that controls my right hand. If it generalizes then the seizure would get larger and I could convulse. Those seizures looked like grand mal and were just as bad but I never lost conciousness. I could see, hear and understood what everybody was saying. I just could not control what was happening. I saw the fear in friends faces, I heard what they said and many times what was said was not what the person meant it was the fear at that time they were making a comment on.I know when I am having a seizure whether they are partial.complex partial or any of the other seizures I have. I also know how long they last and can determine how long it takes to focus (get back to normal) If you are talking to your MD a general practioner does not specialize in epilepsy so they might not know about many different kinds of seizures and yes there are many. Check with your neurologist and he would probably tell you things like I have listed above. I'll put it this way. I worked in a call center and delt with people on the phone daily. I could be on the phone and have a focal seizure which effected my hand and still complete the call. the customer was satisfied and was happy with the outcome. Once the call was over I unplugged my headset becasue I needed to type in the information. The project manager had listened to the call and had not seen me typing any information as is required. He came out and I was typing and he read what was typed. I have put the informatioon in as required and had the solution resolved just as I had spoken to the customer. So not only can a person remember what happened they can also remember what is said and done and input that information into a customers file. Please discuss this with your neurologist because he can tell you which seizures you have that you will not lose conciousness. The loss of conciousness is when you have no memory of what happened. I hope this helps Joe

Hi Dano Oh you are not alone there are many people who know what is happeing in their seizures. There are seizures where the person loses conciousness and one of those is grand mal. I was diagnosed with grand mal,pettite mal and focal motor epilepsy. That diagnosis was done back in the 1960's and back then there were no types. I can also tell you that grand mal is the worst. Pettite mal is the slightest. Focal seizures are different because they are started in one area of the brain and if they do not generalize they stay slight. Mine started with a weird feeling in my right hand. There were times when it would start to rise up. If it stopped I was fine and the seizure would subside. There were times when focal seizures would generalize. They all start in one area of the brain. Mine start in the left lobe area that controls my right hand. If it generalizes then the seizure would get larger and I could convulse. Those seizures looked like grand mal and were just as bad but I never lost conciousness. I could see, hear and understood what everybody was saying. I just could not control what was happening. I saw the fear in friends faces, I heard what they said and many times what was said was not what the person meant it was the fear at that time they were making a comment on.I know when I am having a seizure whether they are partial.complex partial or any of the other seizures I have. I also know how long they last and can determine how long it takes to focus (get back to normal) If you are talking to your MD a general practioner does not specialize in epilepsy so they might not know about many different kinds of seizures and yes there are many. Check with your neurologist and he would probably tell you things like I have listed above. I'll put it this way. I worked in a call center and delt with people on the phone daily. I could be on the phone and have a focal seizure which effected my hand and still complete the call. the customer was satisfied and was happy with the outcome. Once the call was over I unplugged my headset becasue I needed to type in the information. The project manager had listened to the call and had not seen me typing any information as is required. He came out and I was typing and he read what was typed. I have put the informatioon in as required and had the solution resolved just as I had spoken to the customer. So not only can a person remember what happened they can also remember what is said and done and input that information into a customers file. Please discuss this with your neurologist because he can tell you which seizures you have that you will not lose conciousness. The loss of conciousness is when you have no memory of what happened. I hope this helps Joe

Seizures

Comments

Hi Dano Oh you are not alone

Submitted by Anonymous on Tue, 2014-04-22 - 14:43

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