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Seizure free?
Sat, 10/21/2006 - 22:56My story;
Had my first recognized partial in oct 04. I knew from the first second it was a seizure from the burnt toast smell. After a year of having these and getting normal EEG's Ct scans and MRI's I had a grand mal while sleeping. I was put on 400mg of tegretol XR twice daily since oct 05.
Since then i have not had any grand mals or any simple partials like i had preceeding the GM. However i have been having what i believe to be "minor" simple partials. I call them minor because i dont get spacey, smell burnt toast or get very tired like i used to. I always wonder if they even are seizures at all. My doctor and neuro say dont worry about them get on with your life.
My question is when somebody is considered seizure free is it only including obvious ones like Grand mals/serious partials or does it include every possible symptom pointing to a seizure?
Thanks
Comments
Re: Re: Seizure free?
Submitted by andy m on Mon, 2006-10-23 - 11:37
The point I was trying to make is that yes I'm considered ''seizure free'' both medically and legally (re. driving etc), but sometimes little unexplained things happen and somehow the lines begin to blur, like I said maybe due to the amount of bangs on the head and just general aging. Yes I know there are many different types of seizure it's just that when you have had Grand mals most of your life, little things can slip under the radar in so much as they have absolutely no effect on your everyday life, if I sat down and analyzed every little thing that happened to me I wouldn't get much else done.
Re: Seizure free?
Submitted by angel_lts on Mon, 2006-10-23 - 09:28
This is for both you and Andy,
Seizure free means, to have Absolutely NO seizures at all. Not grand mals, complex partials, simple partials....
Wayne it sounds like you are having some seizures. Just staring or losing time is the cause of a seizure, possible complex partials, simple partials, .. Please dont think about driving while this is happening.
Talk with your doctor.
take care
Lisa
http://health.groups.yahoo.com/group/epilepsyapproach/
Re: Seizure free?
Submitted by andy m on Mon, 2006-10-23 - 08:01
Wow this is a tough one!! I have been ''seizure free'' for three and a half years or at least what I perceive as free. Officially I could learn to drive and get a licence no problem, but that is a separate issue. I have been told that I only need to see my doctor once a year as I am considered as very low priority, which is good. However reading various threads on these pages I come across little things that I have experienced, but not to as great a degree as those described by other people. When they happen to me I never even used to give them a second thought. It's just little things like losing track of things for maybe a second or two or occasionally stammering and fighting to get the words out and a tiny little fluttering feeling sometimes in my head. Maybe I'm reading too much into this as I have over the years had a lot of bangs on the head and I'm not getting any younger but I just wondered what other people thought. BTW I'm certainly not losing any sleep over this at all it was just reading the post that got me thinking.