Seizure Dog

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I was diagnosed with JME when I was 16. I am now 33. For the last 8 years or so I have only had 1 seizure a year or so. I feel that is controlled. But there are times they seem to be uncontrolled where I need to change meds. This is happening again. In 3 months I have had 4 grand mals and can just tell there will be more. I have told my doctor I am not feeling 'right' and she raised my meds over the recommended dosage and they have not stopped. I have not admitted to having more recently for fear of losing my license again. I am aware of the risk and just chose not to drive.

Through the 17 years I have learned they always happen an hour or 2 after I wake up or after a nap. Anyway, I am getting to the point I know I have to admit these things to my doctor despite the consequences. I am scared because the seizures lately have came with no warning. I used to always have 'auras' and was able to lay down to avoid injuries. I have injured myself in 3 of these 4 recent ones, including knocking a tooth out and am waiting to schedule 3 root canals for this. I wake up on the floor with a busted nose, black eyes, etc. The problem now is that I am recently single and have moved to an area I only know a handful of people. I am living in an apartment for the first time in my life. My apartment does not allow pets. I obviously have not talked to my doctor yet, but am very confident a seizure alert dog would be such a help for me. Just to warn me of them to prevent even more serious injuries. I have thought about it for years, but always figured since I had auras I would be fine. That has totally changed. I am afraid if I do need and get a dog that my apartment will evict me. I don't know anyone in the area to stay with and don't know what I would do. My lease isn't up for another 9 months so I don't know what I will do if I am kicked out. I don't want to ask them until I know a little more. Why cause an issue that isn't necessary? I am not on SSDI, I am on unemployment. I have been able to work for 8 years until my office closed, so work isn't an issue, yet. I am looking for work and am not sure if I need to explain that I have a service dog at an interview. I am not excited about getting one because of embarrasment, but am getting to the point where I don't feel I have a choice. I have left voicemails for a couple of attorneys and have read so many articles concerning this but they seem to contradict each other at times. Does anyone have any advice or information?

-Missy

Comments

sorry you having this issue.I

Submitted by Anonymous on Thu, 2015-03-19 - 10:43

sorry you having this issue.I do know if a perrson has auras it doesn't mean they will always have them. An aura is a seizure in itself, With some people their aura warns them of a seizure comming on with others they may not have a seizure. I had auras which I didn't know what they were. I also had a grand mal seizure. I haven't had a grand gal seizure in over 40 years. and I haven't had an aura in about that period of time. Howeevr I still have seizures most are simple partial seizures but at times they were focal seizures that generalized. So just because you were having grand mal seizures and auras doesn't mean that those are the only seizures you will have. As for your neurologist raising your dosage,,, without you telling him about these seizures he will do what he thinks is right. If you tell him about these seizures and the increase he might change the medicine. I say that because there were times when dosage changes did not reduce the number of seizures I was having. We changed the medication I was taking and it reduced the number of seizures and the time in those seizures.I have not admitted to having more recently for fear of losing my license againAs for working and having a service dog. You are more afraid of what people will thnk rather then do what is best for you. Understand that there are laws and regulations regarding handicaped people working in a company. Angelia gave you a site to check on service dogs. I live in an area that has about 17 complexex and most do no let people move in with pets. I also know of 2 that live in some of those complexes that don't allow pets. A service dog is not a pet necessarily. They are animals that help their owners. Both of the men are blind. But a service dog that can detect a seizure is just that a service dog. You might check your complex by asking about the use of a service dog to see just what they say. I hope this helps Joe Oh and as for lawyers and SSID you might want to call Binder and Binder. I was about to lose my benefits and called them and went to an appointment. I filled out the paperwork and they went over it with me. Within 3 months I was on disability with medicaid and 6 months later I was on medicare

sorry you having this issue.I do know if a perrson has auras it doesn't mean they will always have them. An aura is a seizure in itself, With some people their aura warns them of a seizure comming on with others they may not have a seizure. I had auras which I didn't know what they were. I also had a grand mal seizure. I haven't had a  grand gal seizure in over 40 years. and I haven't had an aura in about that period of time. Howeevr I still have seizures most are simple partial seizures but at times they were focal seizures that generalized.  So just because you were having grand mal seizures and auras doesn't mean that those are the only seizures you will have. As for your neurologist raising your dosage,,, without you telling him about these seizures he will do what he thinks is right. If you tell him about these seizures and the increase he might change the medicine. I say that because there were times when dosage changes did not reduce the number of seizures I was having. We changed the medication I was taking and it reduced the number of seizures and the time in those seizures.I have not admitted to having more recently for fear of losing my license againAs for working and having a service dog. You are more afraid of what people will thnk rather then do what is best for you. Understand that there are laws and regulations regarding handicaped people working in a company. Angelia gave you a site to check on service dogs.  I live in an area that has about 17 complexex and most do no let people move in with pets. I also know of 2 that live in some of those complexes that don't allow pets. A service dog is not a pet necessarily. They are animals that help their owners. Both of the men are blind. But a service dog that can detect a seizure is just that a service dog. You might check your complex by asking about the use of a service dog to see just what they say. I hope this helps Joe Oh and as for lawyers and SSID you might want to call Binder and Binder. I was about to lose my benefits and called them and went to an appointment. I filled out the paperwork and they went over it with me. Within 3 months I was on disability with medicaid and 6 months later I was on medicare

sorry you having this issue.I do know if a perrson has auras it doesn't mean they will always have them. An aura is a seizure in itself, With some people their aura warns them of a seizure comming on with others they may not have a seizure. I had auras which I didn't know what they were. I also had a grand mal seizure. I haven't had a grand gal seizure in over 40 years. and I haven't had an aura in about that period of time. Howeevr I still have seizures most are simple partial seizures but at times they were focal seizures that generalized. So just because you were having grand mal seizures and auras doesn't mean that those are the only seizures you will have. As for your neurologist raising your dosage,,, without you telling him about these seizures he will do what he thinks is right. If you tell him about these seizures and the increase he might change the medicine. I say that because there were times when dosage changes did not reduce the number of seizures I was having. We changed the medication I was taking and it reduced the number of seizures and the time in those seizures.I have not admitted to having more recently for fear of losing my license againAs for working and having a service dog. You are more afraid of what people will thnk rather then do what is best for you. Understand that there are laws and regulations regarding handicaped people working in a company. Angelia gave you a site to check on service dogs. I live in an area that has about 17 complexex and most do no let people move in with pets. I also know of 2 that live in some of those complexes that don't allow pets. A service dog is not a pet necessarily. They are animals that help their owners. Both of the men are blind. But a service dog that can detect a seizure is just that a service dog. You might check your complex by asking about the use of a service dog to see just what they say. I hope this helps Joe Oh and as for lawyers and SSID you might want to call Binder and Binder. I was about to lose my benefits and called them and went to an appointment. I filled out the paperwork and they went over it with me. Within 3 months I was on disability with medicaid and 6 months later I was on medicare

Seizure Dog

Comments

sorry you having this issue.I

Submitted by Anonymous on Thu, 2015-03-19 - 10:43

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