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Seems dead on here- where do you go for support?
Wed, 07/08/2015 - 21:45Does it seem to anybody else that epilepsy.com is not exactly buzzing with posts and comments in the community message boards? (Sometimes it can go days without a new post from somebody, and there are multiple posts with no comments.)
Where online do you go for support and to ask epilepsy related questions to a community? Is there another website that more people use? Or is it kind of dead on here for the fact that epilepsy is not as common as I would like to think?
I personally find it more helpful to post in a community message board type format, where you can remain semi-anonymous, rather than social media (facebook) because the reality is that no matter how respectable it is to be 100% out in the open about my epilepsy, I DON'T want everybody knowing- (I have had epilepsy-related trouble with employers in the past, and people talk.)
You don't want epilepsy to be
Submitted by Misjoey101 on Fri, 2015-07-10 - 16:15
You don't want epilepsy to be common. :D