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SCARED!
Wed, 05/23/2007 - 09:15I was diagnosed with e two years ago, and any time a new experience/milestone comes up in my life (job, e.g.), i get scared that i'm going to have a seizure. but lately, i've been getting really tired and having myoclonic seizures in my face. only i can see them (they're that mild), but sometimes they some in clusters where they feel really bothersome. they go away when i go to sleep and/or take a nap and are exacerbated by sitting in front of the computer at work.
i get scared that i'm going to have a grand mal. i haven't had one in two years, and then i wasn't on any medication and drinking like a fish. i'm now on lamictal and topamax,but i'm anxious. how does one differentiate between anxiety and legitimate fear? i've been feeling this gut fear for the past few weeks now, like it's been overdue for a seizure, and guess what? i had my last partial complex at the end of april 2006 (a little over a year ago).
it's so frustrating because my e doesn't show up on eeg's (well it hasn't on the two that i've had anyway), and certain things, like tremors in my hands, are better.
does anyone else know what i'm going through?
thanks,
m!
Comments
Re: SCARED!
Submitted by Sonarbat on Fri, 2007-05-25 - 03:24
I had a lot of fear after I was diagnosed. For awhile I just lived with it, but eventually I started counselling. I was only in counselling for 6 months, but it helped a lot. Now the fear is minimal. I've had epilepsy for almost 15 years and I've never had a seizure on an EEG. What I've come to realize is that it doesn't really matter. The symptoms and the treatment is the same whether the doctors see the seizure or not.
Re: SCARED!
Submitted by alc01 on Thu, 2007-05-24 - 23:58
I think I still fear going to sleep every night and that is after about 7 years now. Several times I had no seizures on EEGS. I tired to tell the doc I had some that lasted for hours and he told me it couldn't happened. Then one afternoon I had an eeg where I seizured during the entire EEG. The next morning I had a CAT scan and was seizuring during it - from start to end. It was located in the same spot. He decided (not me) that it was the same seizure that had lasted 15 hours. I just "gave up" and decided to enjoy the ride. Medication slows them down and makes them easier to handle, but nothing seems to prevent them. I have a mild one at least once a week and a major one every two to three weeks. You are not alone!