It is a common question on this forum and a frequently asked one in the chat room whether or not it is "ok" to consume alcohol or smoke marijuana when you have been diagnosed with epilepsy or a seizure disorder. I am here to tell you all something that has happened to me as of yesterday that has made me realize that it is not a good idea...
I am 23 years old my name is Lauren and I have Juvenile myoclonic epilepsy. I have had it since i was 18 and was diagnosed when I was 22.
anyway...last evening a bunch of my friends came over to hang out and play some beer pong and smoke a little weed and just chill. Well long story short in a matter of 4 hours I consumed about 5 beers and smoked a good amount of marijuana. I was suffienciently effed up. I soon found myself slumped on the floor with my hand against my head leaning for support. my best friend asked me if I was alright and being sort of incoherent I mumbled yea, she asked if I wanted to go to bed and I said yes. she brought me to my bedroom and i asked her to grab me a glass of water, when she left to get me my water I just remember slumping over to the side, and I started to vomit all over my bed and all over myself, the vomitting took not effort on my part there was no heaving and it literally poored from my mouth (sorry to be so graphic but i feel people should know) on to my bed, from then on out i was in and out of consciousness this is when i must have had the first tonic clonic (grand mal) seizure of this evening because i distinctly remember feeling as though i were going to urinate or deficate myself, i told my friend to call an ambulance and shortly there after they arrived and I could hear them talking to me however I was unable to respond to them. I could open my eyes for them but i could make out no clear faces or distinctive figures or features of anyone. Finally I was being taken out of my room on a stretcher where i had my next grand mal I was semi conscious for this one I went completely rigid and unresponsive my legs began to shake violently my left arm curled up to my face, my hand was in a claw like position, after the seizure I was post-ictal i started to become sort of angry i started trying to remove the oxygen from my mouth and smacking peoples hands away. I was then brought to the hospital and put on IV fluids and treated like I was some sort of drunken college idiot, they seemed unconcerned that i even had epilepsy...anyway the rest is mundane from here but I will say this...I am currently medicated on 250mg of zonegran and 2000mg of Keppra a day i have been on this regiment as long as other aed's since i was diagnosed with epilepsy. I am usually very cautious about drinking and knowing my limits and in the past i have drank much more then what I consumed on this evening...it just so happened that my body was not having it this particular evening and so this lead to a violent reaction.
I am telling you all this story as a sort of wake up call, that bad things can and do happen even in the mildest cases of epilepsy. My epilepsy is generally well under control and so i thought it was ok to consume alcohol and smoke marijuana, well it is the age old "it won't happen to me" story and i think that everyone who has a friend, loved one, or has epilepsy or a seizure disorder themselves should know this information first hand. Had it not been for my friends and my family, it is uncertain, but possible that i could have died last night. Please take your condition seriously and trust me when I say I know it is hard to give up the life you once knew, but no one wants to hurt their loved ones, when they have to watch you suffer because of your own stupid mistakes. a glass of wine, here and there a beer once a while fine....but dont test those limits....because i learned the hard way, and trust me when I say you dont want to and you dont have to.