progressive myoclonic epilepsy

In the past thirteen years I've gone from jerks to, problems walking and speaking, elevated b/p after episodes, left side of body from face to foot is always has weakness. When I walk sometimes the left side will dip and I may heel in that direction. Must jerks are full body, head and all. Today for the first time my eyes rolled. I don't even have a Dr anymore. I'm not on disability and when had insurance, they hadn't found a need that worked. Was told I needed a sleep study, but I would have to have ins.to be admitted. I'm now filling again for disability going to be able to get answers. Looking for clinical research also. Really tired.