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Problems coping with diagnose

Fri, 07/17/2015 - 16:00

Hi everyone,

Kristoffer is my name and Im diagnosed with epilepsy. I just feel like writing a post and hopefully anyone who feels like could share their opinion or experience.

 

I got my diagnose when I was 23. The MRI didnt show anything. The EEG showed medium activaty. But I do wonder how accurate it is. Bad sleep, no breakfast and stressed because I overslept and during EEG. I get stressed just being at a hospital. Can stress be mistaken for epilepsy waves?

Til date I had 5 grand-mal seizures. Out of these 5 grand-mal seizures there been a excessive drinking the before (10+ beers) in 4 of the cases. They all also involved bad sleep, stressing (once I had to run while only sleeping 2h, hangover to not miss the train).

Ive had 1 grand mal seizure not involving alcohol. I only slept for 1-2h. Went without food for 10h and stressed basically all the time. Plenty of coffee and cigarettes. My second question, would you call these seizures provoked or not? Especially the last one?

 

However I havent had a grand mal-seizure for more than 1.5 year by now. I dont take conventional AEDs but I do take regular cbd oil and magnesium every morning. But I feel basically scared for everything once leaving home. I cant study like normal person. Attain seminares. Or hangout with my friends like a normal being. I feel a huge anxiety when doing these stuff and just going to the supermarket is a pain. I feel like Im gonna have a seizure anytime. But I don't. Since last seizure, 1.5h ago, I had exams, 50 hangovers, visting people, sleeping bad, eating bad food, drinking to much coffee and smoking to much ciggarettes. But I havent had a seizure.

 

What I do feel is something that I cant tell if its epilepsy or of its anxiety? When Im home alone, I basically dont feel any weird til I start thinking of epilepsy. But when Im with other people or shopping, just going for a walk and talking with another I feel like Im gonna have a seizure. I feel like its hard to breathe and its hard to tell sentences, I get a panic-feeling right in the middle of a sentences and it all comes out in one word. This is not constant and I can for the most of the times manage to stay in conversation but I dont feel like Im really there. Does it sound like epilepsy or anxiety to you?

 

It makes me wonder if its the right move quiting the cbd oil and going for a regular AED? I don't wanna throw away something that might work for something that possibly dont work and could make me even worse.

 

If anyone feel similiar or just have any experience they'd like to share. Please go ahead. Take care!

Comments

Thanks, I appreciated that. 

Submitted by Patches1 on Sun, 2015-08-02 - 18:44
Thanks, I appreciated that. 

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