Community Forum Archive

The Epilepsy Community Forums are closed, and the information is archived. The content in this section may not be current or apply to all situations. In addition, forum questions and responses include information and content that has been generated by epilepsy community members. This content is not moderated. The information on these pages should not be substituted for medical advice from a healthcare provider. Experiences with epilepsy can vary greatly on an individual basis. Please contact your doctor or medical team if you have any questions about your situation. For more information, learn about epilepsy or visit our resources section.

Problem about sounds like complex partial seizures.

Sat, 12/31/2016 - 05:03
Hello all member! I'm new to this board, hoping that someone can give me a little information or maybe let me know that I'm not losing my mind. I am 38, diagnosed 15 years ago after multiple seizures, while no reason was ever found at that time I was having nocturnal seizures that I honestly had no recollection of other than the occassional headache. I counted myself very lucky all things considered, followed the doctors orders about getting sleep, took my medication and had routine blood work to check levels etc. In the last few years things have started changing. First I started experiencing absence seizures and in the last couple months I've also started having what sounds like complex partial seizures. These are the seizures that are scaring me very much. Both times I've been woken up from a sound sleep feeling very "antsy" for lack of a better word, then my chest gets very tight and I feel like I can't breath. I immediately get this horrible feeling that something bad is about to happen to me like I'm going to die. I remember waking my husband up and that's pretty much all I remember. Then my vision goes black and I can't see anything. He's told me that I've actually told him "It's about to happen", I've done the same repetitive movements both times and screamed the same things both times and also told him that I'm in pain. I tried to find out the information on this issue through the [color=#000000] internet [/color] and the advice of some doctors at major hospitals. The next day my body feels like someone has beaten me. I have a new neurologist who I saw after the first time this happened and was told that this doesn't sound like a seizure. Unless I'm reading too much into the information that I have on the different types of seizures it sounds like one to me. Has anyone experienced a seizure like this? At any rate I know a previous doctor had told me it's not uncommon for the types of seizures people with epilepsy have to change; however, he never explained why or said if there was a known reason. I appreciate any information and wish everyone the best. Thank's a lot!

Sign Up for Emails

Stay up to date with the latest epilepsy news, stories from the community, and more.