The Epilepsy Community Forums are closed, and the information is archived. The content in this section may not be current or apply to all situations. In addition, forum questions and responses include information and content that has been generated by epilepsy community members. This content is not moderated. The information on these pages should not be substituted for medical advice from a healthcare provider. Experiences with epilepsy can vary greatly on an individual basis. Please contact your doctor or medical team if you have any questions about your situation. For more information, learn about epilepsy or visit our resources section.

Post-seizure symptoms

Thu, 09/01/2016 - 12:21
Hi there I was diagnosed with epilepsy in 2006 when I was 17. I had grand-mal seizures as well as juvenile myoclonic twitches. I went on Depakode, and had 8 more seizures. Then added Lamictal to the Depakode and was seizure-free for 9 years (although I still had the twitches). My doctor then switched the Depakode to Keppra because I was having bad side-effects from it, and she was worried that if I got pregnant the Depakode would harm the baby. (I had no plans on having a baby though). Last year, 4 months after the switch, I had a seizure in my sleep and woke up to that confused feeling, blood in my mouth and a killer headache. I was pretty tired for a few days (as normal). I had two blood tests over the next few months where I passed out and had pretty bad twitches (looked like a seizure but it wasn't a full-blown seizure), but the doctors say it's normal for anyone to pass out and twitch during blood-tests. It has never happened to me before though,- I only pass out when I get blood tests but never twitch. Anyway, the doctor upped my Keppra dose to 2500mg per day. Things were fine. Last Friday I was at a concert that had really intense strobe lights. The morning after I woke up, started twitching violently and felt it in my brain as well, it was like I was awake during the first 5 seconds of the seizure. It then proceeded to a grand-mal seizure and I woke up a minute later. My doctor upped my Keppra-dose to 3000mg per day. Every since that seizure, I have been nauseous, extremely tired and emotional- I've started crying very easily. So my question is- has anyone experienced a post-ictal state that lasts this long? It's been 5 days now and I've read that people feel it for 2 days max. I have a hard time believing that it has anything to do with the Keppra-increase, since it was only upped 500mg and I was already on 2500 so it's not that big of a difference. I don't remember having post-symptoms this bad for this long in the past. Has anyone experienced this?? I'm getting scared. My doctor is in my home country and I'm studying abroad so getting answers isn't that easy at the moment. Hope I can get some input here. Thanks so much and have a lovely day :)

Sign Up for Emails

Stay up to date with the latest epilepsy news, stories from the community, and more.