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Pain during a CPS?

Mon, 04/16/2007 - 10:23
So, I was diagnosed with epilepsy about 6 months ago and have been having seizures for a little over a year now (I spent alot of time ignoring it, dangerous, but I knew what it was, there must be an odd gene on my father's side, most of them are diagnosed around my age, some older). I am a bit frustrated with it; My Dr. seems to be having a bit of difficulty getting me on the right med.cocktail, my once razor sharp memory bit the dust months ago and I hate the idea that I can have one at any moment and freak everyone out around me. Yet, as frustrated as I am - I try to resist the urge to complain, b/c yet in still, I could be much worse off. I'm wondering; 1. Can seizures increase in severity over time? I've been noticing that they seem much more intense and that where at one point I was slightly aware, and could react to a question with at least a head nod, that now I so far into myself that no matter what I am unable to respond in any way, shape, or form. I've always had the various array of arm movements, but now I've had to fulfill this uncontrollable brain command to walk around, straight, in circles, diagonal, it doesn't matter-there have also been a couple that have dropped me to my knees. 2. Does anyone experience a mind numbing pain and nausea beyond belief during their seizure? I almost have the feeling like I want to vomit right there on the spot and afterwards I feel like my body has been pummeled and forget talking to me for at least two hours after just one seizure b/c it takes me a long while to come back "to this side of reality". Thanks for your input, I just want to get a feel for others' experiences....

Comments

Re: Pain during a CPS?

Submitted by jderry on Mon, 2007-04-16 - 10:41
my sez. started when I was in my mid 20's.We had them under control for about 18yrs when all of a sudden a little over 5yrs ago they got out of control when I was driving and I ran my van off the road and into a creek.I broke my back got some bad nerve damage to my legs. Ever scince then controlling my seizures has been a losing battle that seems to be getting slowly worse.I only have them in my sleep but it's enough to ruin my atempt at a normal life.I went for surgery but no can do.I hate to think of the rest of my life fighting these things and putting up with the meds will be like but I'm not giving up.

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