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out of body experience
Wed, 08/09/2006 - 10:43 name is iveliise(27), my boyfriend jassen(27) has been diagnosted with epilepsy 3 yrs ago. he has had a siezure every month since his first in 2002.. he had 4 gran mal siezers since saturday.. this time he is feeling very scared.. he explained to me last night, that he thinks he's going crazy..he described everything as feeling fake..he said that he felt like he was standing on the other side of the room watching us. he has been apoligizing for days now.. he keeps asking me if he's going to die.he has been siezure free for a little over 24 hours now..i'm confused cuz i don't know how to confort him...i keep answering his questions but he still feels like he is going crazy...has anyone ever felt this way before..
Comments
Re: out of body experience
Submitted by romaboots on Wed, 2006-08-09 - 10:53
Hi Iveliise: I've had the out-of-body experience numerous times. I was diagnosed with seizure disorder as a result of a head injury I incurred in a cab accident last fall. Sometimes during the onset of my seizures, I feel like I'm being sucked into a tunnel or moved against my will across the room and have this sensation of watching myself as I go into a seizure. I've read on this forum that this is an experience that is not unusual.
Your boyfriend is definitely not crazy, although I can relate to the feeling as I felt like I was going crazy for months. I have the good fortune to work with neuropsychologists at a University here in CA, and when I discussed this out-of-body experience with them, they said it's not at all unusual when someone goes into a seizure.
My best to both of you, and please know you're not alone in this struggle we share in dealing with our own and our loved ones seizures.
Denise
Re: Re: out of body experience
Submitted by gretchen1 on Wed, 2006-08-09 - 21:27
I get the sucked backwards thingy visually and sometimes I even feel pulled like a magnet. Yuck, I hate that. OR I get the periscope where everything looks really tiny and far away. I don't think I've felt totally out of body, it seems like lately somebody was posting they do tho, but I get Jamais Vui's which you might want to look up. The definition will be on this site probably or try Google. In Jamais Vu's I'm totally conscious but the familiar to me is unfamiliar. It won't be everything in a room but many things. For whatever reason I always know who my dog is but not only don't know my cat, don't even know what a cat IS and several times remember sobbing in my husband's arm because I'm terrified of our cat. I've left my house to get something, have a Jamais Vu, turn around and have NO idea which is my house. In fact none of the houses look remotely familiar. I know that's not what you're boyfriend is having but I'm hoping if he can see how dang bizarre some of these seizures can be, maybe that will give you a tool to help him, and yourself.
BUT if this is new seizure activity to him, it seems like it's persisting, I'd call his doctor and let him know. I periodically gain a new seizure type, seem to stop having another one, IOW my seizures morph a lot but that's not been his pattern. I'd let his doctor know but personally? I'm not real worried but I do call my doctor when something like you described is new and is concerning me. We all need to be very careful about self diagnosis.
Gretchen
Hi, I had my first experience
Submitted by Baer_5afddc356eb13 on Thu, 2018-05-17 - 16:12
Hi, I had my first experience not too long ago and was very scared that it was a near death incident. I was walking around thinking that my seizures were getting serious. I got a hold of my doctors office and it's quite common among people with seizures. Some have it more than others I have discovered. You can have an out of body experience with or without a near death experience. It's absolutely not crazy, it's definitely happening and I feel it can be made good use of as we don't usually retain memory of our seizures. But when I had my out of body experience I realized that I was missing things from what my family members were recalling because of it and knew to ask more questions. What they were telling me didn't seem to seamlessly fit with what I saw. I didn't see my whole seizure, only a small part so I had missing pieces. I also was able to actually add detail to what they recalled and was very pleased to see that they listened to seizure first aid, from what I saw, that I have been retelling them all the time to make sure they get everything right. Above all else, talk to your doctor openly about everything. Write every experience down with every little detail. Time everything and see what they say.