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Other nervous system issues tie in to Epilepsy?

Wed, 02/11/2015 - 23:54

Hi,

I haven't posted for a while, but I'm 37 and have had epilepsy since 8-years-old.

My seizures are fully controlled with clonazepam. I took other meds when I was younger, but never obtained full control of both partial and generalized tonic clonic seizures. So, this has worked for me.

Bear with me for a moment as I explain something seemingly unrelated:

A couple of weeks ago, I noticed a tightness in my ankle, kind of like the ankle needed to pop. I reported it to work the next day because part of my job is often spent walking a lot. So, I got blasted because I didn't report at the end of the previous day when I first noticed it, but that was before I got home, took my shoes off and noticed pain in my heel and tenderness along the instep near the heel. It was put down to plantar fasciitis and a couple of other things with long names that I won't bore you with. Suffice to say, tendon issues. Placed on restricted duty. Boss upset. I'm upset. We're all upset. So, then two days ago, I'm getting out of my car to walk across the parking lot and notice I have that same tightness in my right ankle this time. In both instances, there was no slip/trip or fall or incident that I could think of to cause these events. I reported the right ankle issue as soon as I got into the building. Naturally, it was unbelievable, but I was sent off to the hospital to get it checked out. At the time, little to no pain...just felt a bit tight.

I attend a follow-up the next day and the right ankle/foot are cleared for duty. The left is still waiting for help...

Anyhow, since my left ankle/foot started playing up and the right actually has started acting up. Today I've noticed pain in heel and basically in a broad area around the foot and leg. Upper extremities are involved too, but I can't really say there's an injury. It's almost like it feels like the start of Carpal Tunnel, except I've never had it in either arm. I was just really educated in it when I was younger because that was a new kind of injury that was occurring as a result of people getting stuck at computers and expected to type fast and ergonomics were really being discussed. So, anyway, my concern is that it's not just plantar fasciitis et al, but that they may be symptoms of something else since I have all four limbs involved and I have to say it's odd. I even told my employer that I will be following up with my personal doctor to establish other possibilities - even while the workman's comp case is being worked on for my left ankle. She's naturally skeptical of everything and I'm also a wee bit that way because I had no injury. Sure, being on your feet can wear your feet out and walking across variable terrains can too. But, I'm wondering if there's something else going on that may be neurological in nature. Not seizures, but another condition and that's why I'm posting. I'm starting to wonder about things like multiple sclerosis, neuropathic pain,  and rheumatoid arthritis. My medical history is basically a history of seizures and migraines, but the seizures are controlled and the migraines are typically silent migraines - silent in the aspect that pain isn't usually present, just prodrome kind of "having trouble waking up even after decent sleep and it's like that for two hours and foggy brain". Those are my signs for a silent migraine. Vision may be affected, but not to the same degree it was when I had hideous migraines years ago.

My uncle was recently diagnosed with Parkinsons. I didn't know we had it in our family. I know it's not always hereditary. My daughter has been diagnosed as being on the Autism spectrum and my brother had epilepsy (still does?) but not as bad as mine was before I got it controlled. So, I guess I'm wondering what's up inside. My grandfather had bipolar disorder, but only had about 3 bad episodes in his life that my father recalls. I am aware there are some links between some of these conditions in some people and that's why I raise them.

I've already checked a couple of other boxes with associations to epilepsy and other conditions that seem to come up in some people. I had ovarian cysts - cancer to be precise. I was 27. I have had gastrointestinal issues ever since and prior to that, constipation was typical. I have since found out I have a tortuous colon, which may explain the constipation. Sorry for the details, but I'm trying to draw a picture and I'm trying to find out if anyone might know something. I will be seeing my doctor on the 26th of this month and will be asking for a referral to whomever she sees fit. But I think it's going to be a neurologist. My physical response to minor things seems to becoming less tolerant. When they did the x-ray of my foot yesterday, I had to turn my leg a certain way and when I turned it, it was like I had pulled a muscle. After winding down a window in the work vehicle, it was like I could feel pain in the palm of my hand from holding the window winder (old-fashioned metal thing you don't see in cars now). My physical responses do not seem typical, so am becoming increasingly suspicious.

Comments

I understand you are tryinh

Submitted by just_joe on Thu, 2015-02-12 - 09:50
I understand you are tryinh to find out what might be causeing your issue. Well you can look at this is different ways. The central nervious system does a lot since it includes the BRAIN and nerves. The way you can fine more information is my typing in  "ailments stemming from the central nervious system in your search engin. Which is what I did.  I found this in one site Diseases of the nervous system “Of all the diseases of the nervous system, the most common difficulty that people have is pain, and much of that is nerve-related,” according to Dr. Shai Gozani, founder and CEO of NeuroMetrix, a medical device company. “There are 100 million people who live with chronic pain.”According to the Mayo Clinic, patients with nerve disorders experience functional difficulties, which result in conditions such as:
  • Epilepsy, in which abnormal electrical discharges from brain cells cause seizures
  • Parkinson's disease, which is a progressive nerve disease that affects movement
  • Multiple sclerosis (MS), in which the protective lining of the nerves is attacked by the body’s immune system
  • Amyotrophic lateral sclerosis (ALS), also known as Lou Gehrig's disease, is a motor neuron disease which weakens the muscles and progressively hampers physical function
  • Huntington's disease, which is an inherited condition that cause the nerve cells in the brain to degenerate
  • Alzheimer's disease, which covers a wide range of disorders that impacts mental functions, particularly memory.
Mayo Clinic also noted that the nervous system can also be affected by vascular disorders such as:
  • Stroke, which occurs when there is bleeding on the brain or the blow flow to the brain is obstructed;
  • Transient ischemic attack (TIA), which are mini-type strokes that last a shorter period of time but mimic stroke symptoms; and
  • Subarachnoid hemorrhage, which is specifically bleeding in the space between your brain and the surrounding membrane that can be the result of a trauma or rupturing of a weak blood vessel
So they will do tests and one will be an EEG   Any ailment stemming from the brain will go thru the central nervious system. Before neurologists went into specializations a neurologist would be looking for things that can be associated with ailments. Many of the tests are the same but the area they look at or things they look for is different I hope this helps Joe
  • Epilepsy, in which abnormal electrical discharges from brain cells cause seizures
  • Parkinson's disease, which is a progressive nerve disease that affects movement
  • Multiple sclerosis (MS), in which the protective lining of the nerves is attacked by the body’s immune system
  • Amyotrophic lateral sclerosis (ALS), also known as Lou Gehrig's disease, is a motor neuron disease which weakens the muscles and progressively hampers physical function
  • Huntington's disease, which is an inherited condition that cause the nerve cells in the brain to degenerate
  • Alzheimer's disease, which covers a wide range of disorders that impacts mental functions, particularly memory.
Mayo Clinic also noted that the nervous system can also be affected by vascular disorders such as:
  • Stroke, which occurs when there is bleeding on the brain or the blow flow to the brain is obstructed;
  • Transient ischemic attack (TIA), which are mini-type strokes that last a shorter period of time but mimic stroke symptoms; and
  • Subarachnoid hemorrhage, which is specifically bleeding in the space between your brain and the surrounding membrane that can be the result of a trauma or rupturing of a weak blood vessel
So they will do tests and one will be an EEG   Any ailment stemming from the brain will go thru the central nervious system. Before neurologists went into specializations a neurologist would be looking for things that can be associated with ailments. Many of the tests are the same but the area they look at or things they look for is different I hope this helps Joe

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