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Only had one seizure..been off keppra for 5 months
Sat, 04/19/2014 - 13:18Hi Everyone!
This is my first time on this site and I thought I could receive some feedback from people with similar situations. I am 18 and I had my first seizure a little over 2 years ago. At the time that I had the seizure I was on monocycline for my acne. From what was decribed of the seizure from my friend who witnessed it, it seems that it was a grand mal. I do not remember how I felt before the seizure happened at all, I just remember waking up confused. I saw a neurologist the next week where I got an eeg done and the results showed a couple abnormal spikes in my brain. The neurologist put me on keppra and I was taking 2 1000 mg a day. After being seizure-free for 2 years, I had the option of getting off the medication. After talking about it with my family and the doctor, I decided to get weaned off. I truely believe the acne medication that I was on has something to do with the seizure, but my neurologist won't say. I am currently completly weaned off of Keppra and I feel fine but I still worry that I am going to have another seizure. I have been off of keppra for almost 5 months now with no seizures. I decided to get off the medication because I believe I will not have another one but the only way to see is to get off of the medication. My neurologist ordered an eeg that I got done yesterday, and I will find out the results in about a week. Has anyone experienced something similar like my case? I am getting anxiety of my results of my eeg. Please Help!
I can only say for my self I
Submitted by Anonymous on Sat, 2014-04-19 - 16:41
I can only say for my self I have had Epilepsy for over 45 years and I have focal & Grand mal seizure. so if you M.D.did not fine some thing show up on your tests like a tumor or you did not get it from hitting your head then your like a lot of us no neurologist can tell how you got it and what meds will work its a try and see if it stops your seizure from happing and it seems they did or your brain could have fix its self. and that's ware its at we know more about are sea's then we know how your brain works. as for what my happen do not think about it live your life as each day is your last do not give any thought to if you will have one agene that's some thing that my never happen agene. but if it happens to god forbid you will be beater off that you know about it that's what I would tell you. and its good to here about some one getting over there seizure it gives hope too those that still have them.