New to seizures

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Hi everyone :)

I am Nicole :)

I am new to this..was at work one day and had a tonic clonic (?) seizure and was taken by ambulance to a local hospital and kept there for four days..I am now home with kepra and Ativan and trying to learn more about this.

In July 2014 I was hit by two semi trucks and lived to tell about it (somehow) I had a neck fracture and the dr thinks I am having seizures now because of a piece of bone touching my brain. (Not sure how that works really or if it's truly a possibility) I am on keppra which I'm not truly sure how long it takes to start working..I have been having anywhere from 2-6 seizures daily and I have a one year old daughter so it's kind of feeling like my life has been turned upside down..I can't drive, can't shower alone, can't care for my daughter alone, and I don't do well with change and I'm used to being very independent. My mother is scared to leave me alone and so is my husband which is driving me crazy cause I'm 24 and feel like I'm being babysat. Just need a few new friends who understand what I'm going through and I don't know anyone in my area so that doesn't help much..

Would love to meet some new friends to "shake it up" with :)

Love and light,

Nicole Marie

Comments

welcome to the club NicoleI

Submitted by just_joe on Wed, 2015-04-08 - 15:56

welcome to the club NicoleI read your post and understand that you are having seizures. Without knowing when you started having them I can't say if the medications are working. First let me tell you that seizure medications are nothing like aspirin where one size fits all. It takes time for the medication to build up the therapeutic levels in your body. So until those are set you may have side effects. Generally the side effects go away after 3-4 weeks. Generally the neurologist sets an apt up for 3 months after the diagnosis to see how things are going. He will be asking questions in that visit. Have you has anymore seizures? and several others. While asking those questions he is gathering information by getting your answers along with seeing how you are doing physically. With the answers he will make some decisions about how to help you get seizure free. The medication you posted Keppra is becoming the go to medication. I have been on it for + years. It has reduced the number of seizures I was having. It has also shortened the time in those seizures along with the postictal period. You may have several other people in here letting you know that it does work and that it has helped them or their kids.Now down to your questioning if the bone hitting your brain might be the cause of your epilepsy. It could very well be the cause/ I say that because all it takes to cause epilepsy is for something to cause an electrical impulse to go wrong in the brain. I can also say it because the cause of my epilepsy is scared brain tissue. That scar tissue is from a hemorage to my brain. That hemorage was from a blow to my head between 6-8 YOA. At the age of 7 a rung on the ladder I was on came out and I di hit my head. That hit spun my head around slamming my face into a rail on a bunk bed knocking 4 teeth out and gashing the inside of my jaw and slicing my tongue. I was taken to the hospital and the doctors were more worried about the cuts then the bump on my head. Oh and back then there were no ct scans or any MRI's... while you did post the number of seizures you are having you didn't post the type of seizure. That can make a big difference. I do know that epilepsy and seizures can turn your life upside down. I also know that once a person learns how to deal with things and their medications start working things do change. When I was diagnosed it was Grand Mal, Petite Mal and Focal Motor epilepsy. The worst kind of seizure The slightest kind of seizure and focal seizures can land in many different areas especially if they generalize.I would suggest you get the My Epileppsy Diary which can be found on any page in this site. watch the video and use it. There isa note pad in it to note things. If you have a seizure then note it and note anything that day that was different. By using it and giving your neurologist to bring it up he can then look at the graphs and other information which could help him with dosages, other medications or procedures that might help you get seizure free.Now back to meds..... If your meds are to be taken 2 times a day then to help your therapeutic levels stay where they are needed by all means make those times 12 hours apart. I take mine at 8 am and pm.... Before when I took them at 7am and 10pm there were times I would have a breakthrough seizure. The reason was because of the different was not 12 hours but was 15 hours so the therapeutic levels were lower then the therapeutic level needed to control my seizures.I hope this helps and you get seizure freeJoeOh and please come back and let us know how you are doing.

welcome to the club NicoleI read your post and understand that you are having seizures. Without knowing when you started having them I can't say if the medications are working. First let me tell you that seizure medications are nothing like aspirin where one size fits all. It takes time for the medication to build up the therapeutic levels in your body. So until those are set you may have side effects. Generally the side effects go away after 3-4 weeks. Generally the neurologist sets an apt up for 3 months after the diagnosis to see how things are going. He will be asking questions in that visit. Have you has anymore seizures? and several others. While asking those questions he is gathering information by getting your answers along with seeing how you are doing physically. With the answers he will make some decisions about how to help you get seizure free. The medication you posted Keppra is becoming the go to medication. I have been on it for + years. It has reduced the number of seizures I was having. It has also shortened the time in those seizures along with the postictal period. You may have several other people in here letting you know that it does work and that it has helped them or their kids.Now down to your questioning if the bone hitting your brain might be the cause of your epilepsy. It could very well be the cause/ I say that because all it takes to cause epilepsy is for something to cause an electrical impulse to  go wrong in the brain. I can also say it because the cause of my epilepsy is scared brain tissue. That scar tissue is from a hemorage to my brain. That hemorage was from a blow to my head between 6-8 YOA. At the age of 7 a rung on the ladder I was on came out and I di hit my head. That hit spun my head around slamming my face into a rail on a bunk bed knocking 4 teeth out and gashing the inside of my jaw and slicing my tongue. I was taken to the hospital and the doctors were more worried about the cuts then the bump on my head. Oh and back then there were no ct scans or any MRI's... while you did post the number of seizures you are having you didn't post the type of seizure. That can make a big difference.  I do know that epilepsy and seizures can turn your life upside down. I also know that once a person learns how to deal with things and their medications start working things do change. When I was diagnosed it was Grand Mal, Petite Mal and Focal Motor epilepsy. The worst kind of seizure The slightest kind of seizure and focal seizures can land in many different areas especially if they generalize.I would suggest you get the My Epileppsy Diary which can be found on any page in this site. watch the video and use it. There isa note pad in it to note things. If you have a seizure then note it and note anything that day that was different. By using it and giving your neurologist to bring it up he can then look at the graphs and other information which could help him with dosages, other medications or procedures that might help you get seizure free.Now back to meds..... If your meds are to be taken 2 times a day then to help your therapeutic levels stay where they are needed by all means make those times 12 hours apart. I take mine at 8 am and pm.... Before when I took them at 7am and 10pm there were times I would have a breakthrough seizure. The reason was because of the different was not 12 hours but was 15 hours so the therapeutic levels were lower then the therapeutic level needed to control my seizures.I hope this helps and you get seizure freeJoeOh and please come back and let us know how you are doing.

welcome to the club NicoleI read your post and understand that you are having seizures. Without knowing when you started having them I can't say if the medications are working. First let me tell you that seizure medications are nothing like aspirin where one size fits all. It takes time for the medication to build up the therapeutic levels in your body. So until those are set you may have side effects. Generally the side effects go away after 3-4 weeks. Generally the neurologist sets an apt up for 3 months after the diagnosis to see how things are going. He will be asking questions in that visit. Have you has anymore seizures? and several others. While asking those questions he is gathering information by getting your answers along with seeing how you are doing physically. With the answers he will make some decisions about how to help you get seizure free. The medication you posted Keppra is becoming the go to medication. I have been on it for + years. It has reduced the number of seizures I was having. It has also shortened the time in those seizures along with the postictal period. You may have several other people in here letting you know that it does work and that it has helped them or their kids.Now down to your questioning if the bone hitting your brain might be the cause of your epilepsy. It could very well be the cause/ I say that because all it takes to cause epilepsy is for something to cause an electrical impulse to go wrong in the brain. I can also say it because the cause of my epilepsy is scared brain tissue. That scar tissue is from a hemorage to my brain. That hemorage was from a blow to my head between 6-8 YOA. At the age of 7 a rung on the ladder I was on came out and I di hit my head. That hit spun my head around slamming my face into a rail on a bunk bed knocking 4 teeth out and gashing the inside of my jaw and slicing my tongue. I was taken to the hospital and the doctors were more worried about the cuts then the bump on my head. Oh and back then there were no ct scans or any MRI's... while you did post the number of seizures you are having you didn't post the type of seizure. That can make a big difference. I do know that epilepsy and seizures can turn your life upside down. I also know that once a person learns how to deal with things and their medications start working things do change. When I was diagnosed it was Grand Mal, Petite Mal and Focal Motor epilepsy. The worst kind of seizure The slightest kind of seizure and focal seizures can land in many different areas especially if they generalize.I would suggest you get the My Epileppsy Diary which can be found on any page in this site. watch the video and use it. There isa note pad in it to note things. If you have a seizure then note it and note anything that day that was different. By using it and giving your neurologist to bring it up he can then look at the graphs and other information which could help him with dosages, other medications or procedures that might help you get seizure free.Now back to meds..... If your meds are to be taken 2 times a day then to help your therapeutic levels stay where they are needed by all means make those times 12 hours apart. I take mine at 8 am and pm.... Before when I took them at 7am and 10pm there were times I would have a breakthrough seizure. The reason was because of the different was not 12 hours but was 15 hours so the therapeutic levels were lower then the therapeutic level needed to control my seizures.I hope this helps and you get seizure freeJoeOh and please come back and let us know how you are doing.

New to seizures

Comments

welcome to the club NicoleI

Submitted by just_joe on Wed, 2015-04-08 - 15:56

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