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New Here

Thu, 01/25/2007 - 23:34
Howdy, I just discovered this site, but I was diagnosed with Psychomotor Epilepsy shortly after I turned 20 in 2002, although I've had symptoms for years before that. I seem completely unresponsive to Meds, and It looks like getting my driver's license back anytime soon is just a pipe dream, which really blows becasue there isn't any Public transit where I live (Southern WV). Just wanted to know if anyone else has similar experiences about Meds, or anyone with the same type of Epilepsy How common are the various types anyway?

Comments

Re: New Here

Submitted by spiz on Fri, 2007-01-26 - 01:46
DmAlchemist, Hello and welcome to the forum! I hope you like it here as this a place full of caring people. Psychomotor Epilepsy is the old term for Temporal Lobe Epilepsy (TLE). There is info on TLE on E.Com as well as other info sites regarding Temporal Lobe Epilepsy . I also have TLE. I was first put on Dilantin and Klonopin which did poorly on me. Then in '89 was put on Depakote and Tegretol, which was like a wonder drug for me. From '89 to '04, my seizures were controlled. Then in november of '04, seizures returned. Not full force as they were when they were first diagnosed but more to how they were when I was on dilantin. They've recently upped my dosage again on the Depakote, so we'll see how that does. What type of meds are you on? What other kinds have they tried on you? I truly hope they'll find something that will work for you. :) Take care! -Spiz

Re: Re: New Here

Submitted by DmAlchemist on Fri, 2007-01-26 - 11:46
I was first on Depacote then a WAY higher dose of same which made me feel like a zombie and didn't help, then he tried oxcarbazpine (sp?) and later something called anatriptalyin(sp?) which damn near killed me, sent me into a three day long confused hallucinogenic fog, So far nothing has really helped at all, not medicine anyway, I started studying Tai Chi and Aikido which has helped me deal with living it and really helped depression but not with seizure activity. Right now I'm not on anything, partially because I am not at WVU anymore and don't get free medical care but Doc had started discussing other options when I had to move back home, I will say that the doctor continued to see me "off the record" free of charge, when I couldn't pay for it anymore which was pretty cool of him I think. Ever hear of any non-medication options that might work, maybe dietary changes or something? I was also wondering Do you get hallucinations, synesthesia, or "weird vibes" (sorry about the vagueness, best description I can give) or sleep disturbances in between seizures? I mean how common is this kind of stuff? When I get a little money, I buy books; with what is left, I buy food and clothes. -- Erasmus

Re: Re: Re: New Here

Submitted by tlh64 on Fri, 2007-01-26 - 15:14
Hi DmAlchemist. Does West Virginia have a medical school run by a state university? Since you are a resident of WV, they may be able to help with your medical care at a free or discounted rate. Also, you may contact an area chapter of the Epilipsy Foundation to help with suggestions. Their web address is http://www.epilepsyfoundation.org tlh64

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