The Epilepsy Community Forums are closed, and the information is archived. The content in this section may not be current or apply to all situations. In addition, forum questions and responses include information and content that has been generated by epilepsy community members. This content is not moderated. The information on these pages should not be substituted for medical advice from a healthcare provider. Experiences with epilepsy can vary greatly on an individual basis. Please contact your doctor or medical team if you have any questions about your situation. For more information, learn about epilepsy or visit our resources section.

New with epilepsy

Thu, 09/14/2017 - 18:15
Hi everyone I'm Cynthia I'm 21 and just got diagnosed with epilepsy. It's very hard for me at the moment. I can't seem to find help I can't get a doctor to see me without insurance and unfortunately the seizures are getting worse especially that I get them in my sleep and have no control. I'm starting not to remember anything right after the seizures is over. Doctors at the emergency room all have different opinions and can't tell me if it's normal or not. My vision is getting worse and unfortunately I am hearing impaired and that is getting worse. If anyone can please take the time and talk to me explaining how I can get help to see a neurologist and how the deal with epilepsy please feel free it's a very scary thing for my fiancé and I and we are trying to stay strong and come to terms with this.

Comments

Hi there Cynthia!  I am so

Submitted by cancun01 on Tue, 2017-09-19 - 01:08
Hi there Cynthia!  I am so sorry for what you are going through.  You need to find a way to get to a neurologist for sure.  Have you checked neurologists that work for your local hospital? Not one in private practice.  You might have luck checking in to that.  Also on this website try giving epilepsy.com a call.  I think they might be able to point you in the right direction.  You have the right idea.  Stay strong and surround yourself with supportive people.  Stay away from stressful people and situations as much as possible.  Just remember you are not alone....see my other post about my story.  If you have any other questions... please feel free to ask!

Hi. Not knowing is hard. I

Submitted by LaBreeska on Sat, 2017-09-23 - 23:00
Hi. Not knowing is hard. I was tested but no one found any problems with the tests. The episodes became more frequent and I was having more triggers setting them off. I never got definitive answers from any doctor or neurologist. They said I look healthy. So I pursued natural ways to manage it. I focus on good nutrition, which includes some excellent vitamins and supplements. I also keep stressors to a minimum. I've recently began using the best CPTG essential oils to help support healthy brain, nerve, thyroid, and cardiovascular function. When I feel like things are off, I run to the essential oils and begin administering them and soon my body begins to balance out. I hope and pray you are able to find something that helps you!

Sign Up for Emails

Stay up to date with the latest epilepsy news, stories from the community, and more.