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Fri, 03/31/2017 - 13:50I am looking for other people who may experience nocturnal seizures. My long term boyfriend (still waiting for that ring!) had his first seizure in February 2016. He went for EEG and CT scan and everything came back fine. The doctor told him that everyone is ok to have one seizure in their lifetime. This January he had his second one (11 months later), and the doctor has scheduled more tests but also diagnosed him with nocturnal epilepsy, offered him medication however he denied it. This morning (2 months later) he has had his third one. This time we woke up to use the washroom and fell while doing so into a grand mal seizure. All three times have been grand mal. The first he was dead asleep. This always happens in the morning. The second time he had just got up to use the washroom and layed back down to sleep and it occurred around 5 minutes after he was sleeping. The third one, this morning, he was standing up peeing, and fell (thank god didn’t hurt his head).
He doesn’t remember getting up to use the washroom. My question is medication, now that it seems the gran mal are occurring more often, we should really consider the medication. I am wondering what people who suffer from nocturnal seizures only take and how it helps them? Any insight would be helpful, I am an emotional wreck and feel so helpless.
Thank you and I appreciate anyone’s support and advice.
Comments
Thanks for your response. How
Submitted by sarajessie on Mon, 2017-04-03 - 12:52
Thanks for your response. How do you cope? I find myself terrified for him to even be in the washroom on his own, which is causing more issues between the two of us. Hes so stubborn that he wont quit his job (he works on roofs) . He doesn't seem to be taking it as seriously as I am. I am terrified for him every day that he goes to work. Is there a possibility that the medication will create more seizures for him? Do you recall how many seizures you have while sleeping? Do you ever hurt yourself badly? The last seizure he had on friday he was standing up (just woke up but doesn't remember) and he fell into a wood shelving unit and scrapped up his arm pretty bad with bruising. I happened to be running late for work that morning (THANK GOD) or else I wouldnt have been there to help protect his head. I counted this one this time and it was just over a minute. He could have really hurt himself if I wasnt there. Im just so worried about him Its literally breaking me down and on my mind all day that i cannot even focus.
Thanks for your response. How
Submitted by sarajessie on Mon, 2017-04-03 - 12:55
Thanks for your response. How do you cope? I find myself terrified for him to even be in the washroom on his own, which is causing more issues between the two of us. Hes so stubborn that he wont quit his job (he works on roofs) . He doesn't seem to be taking it as seriously as I am. I am terrified for him every day that he goes to work. Is there a possibility that the medication will create more seizures for him? Do you recall how many seizures you have while sleeping? Do you ever hurt yourself badly? The last seizure he had on friday he was standing up (just woke up but doesn't remember) and he fell into a wood shelving unit and scrapped up his arm pretty bad with bruising. I happened to be running late for work that morning (THANK GOD) or else I wouldnt have been there to help protect his head. I counted this one this time and it was just over a minute. He could have really hurt himself if I wasnt there. Im just so worried about him Its literally breaking me down and on my mind all day that i cannot even focus.
If treatment was started then
Submitted by just_joe on Fri, 2017-03-31 - 18:14
If treatment was started then the seizures will become more rapid and more frequent. For all you know he might have been having seizures for some time. Kind of like a person that looks like they are day dreaming can be having absence or focal seizures. BEEN THERE DONE THAT. For me those 2 years of daydreams were seizures,Yes people in the ER will tell you that a seizure might be a one time thing. The CT shows the brain as it is and the EEG is a test that shows the electrical output from the brain. I had 20-25 different EEG's that all cane back normal. It was that 26th EEG that came back with abnormalities. That EEG was a little longer and I fell asleep in it. The neurologists then looked at the MRI and found scar tissue.Medications are created to stop seizures and they all work. They all work it is finding the medication and the dosage that takes time. Side effects are there especially in the first 3-4 weeks. It takes that much time for your body to get used to the medication and your body to builds up the therapeutic levels the neurologist wants in it. Those therapeutic levels are there to stop break thru seizures if a person taken a dose late or even forgets one.