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Never be Ashamed of Your Epilepsy

Fri, 04/29/2016 - 07:31
I've been epileptic over 45 years and never been embarrassed by it. When 1st diagnosed-age 16- I was grateful to find an explanation for my 'weirdness'.Its simply due to a short circuit in regular brain activity. The more I researched it the more fascinated-so many geniuses/inventors have had it also. So little is known about our complex brains its easy to understand why most seizures are unexplained. Mine have never been controlled & always linked to my hormones-the worst always occurred just before my period started. My friends and family knew about this and knew what to do when I had a seizure and how to " deal" with it just like I did. My mother-born 1912-researched it also and was able to get me a scholarship for college because of my epilepsy. My husband-1978-knew I was epileptic & always helped me also. I had 5 pregnancies, three were severely deformed (due to the meds I was on then) but I was able to have 2 beautiful kids. Now there are meds which will not hurt a fetus at all! My husband died suddenly in 2000 and I think I was able to deal with this because my epilepsy has made me a stronger person. I thought I'd never want another but 6 1/5 years after I accidently met a wonderful intelligent man who I have been with for over ten years now. Guess what brought us together- My Epilepsy!! When I told him about it-our 1st conversation-he told me of his daughter having it also as a child due to her cerebral palsy and it went from there. (I even gave him my real phone #) Like my children he has seen me have many seizures, knows how to deal with them and that they will pass. I now have daily partials and I always tell people about them so they will understand. Most times when I first mention my epilepsy someone will tell me of theirs or a freinds/relatives also. Epilepsy is not terminal like diabetes, cancer etc-so be grateful for that. The more you learn the more you will understand about your own. Keep an open mind for future treatments also.

Comments

You are just starting to

Submitted by margiefox118@live.com on Sat, 2016-04-30 - 06:05
You are just starting to understand your daughter's seizures and how to treat them. Please rest assured -no matter how bad they must seem to you-they will never kill her. She may fall and injure herself when having one but the seizure itself is not harmful. The more you learn the more you will understand. There are a multitude of anti-seizure meds you just have to find the right one and this will help her-just like giving her aspirin for a fever.I have two kids who grew up with my epilepsy and were never afraid for me. I remember one time I had a severe one with a group of people. When I was coming to after I heard my 9 year old daughter telling the adults not to call 911 or rush me to a hospital because she knew it was notnecessary and I'd be fine. Your daughter may need time to feel normal after a seizure but she will also be fine. The more you see this the safer you will feel.,you both have nowhere to go but up!

Reality is this 1 in 3 of

Submitted by margiefox118@live.com on Thu, 2016-05-19 - 08:11
Reality is this 1 in 3 of SUED cases are from epilepsy that has not been diagnosed or not being treated properly. This is important to help people understand what they must do if they have epilepsy.  An "uncontrolled" seizure can be easily be averted..To say this could happen in an case is not true.You must realize how negative dwelling on this is. Your responses to others confirms their woes also. When will you talk of coping instead of how terrible epilepsy is? Please try to ease your tension by reading some positive things-like how many geniuses in history have had epilepsy and how they dealt with it also.

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