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In need of advice desperately

Tue, 04/26/2016 - 11:56
Hello I have juvenile myoclonic epilepsy and told by my neurologist recently that I might have partial seizures .I was diagnosed with Epilepsy at age 11 after a grand mal seizure. I had petite mal seizures before my grand mal but my doctor didn't know what was going on until I had my grand mal. I have had a couple dizzy spells that last about 30 minutes. The room feels as if it is moving out of my eyesight when I look at something in the room. It has happened three times since February. I have also noticed that addition to the memory loss I've been having a very hard time forming words while having conversations. Its been really embarrassing and stressful. I'm not sure what is going on but its been getting worse and worse with every day that passes. I'm forgetting very important days in my life from people(My sister told me something about a friend of ours that we apparently hung out with on and off for about a year, and I have no idea who this person is and that's not the only time this has happened) or even my childhood. I also cannot make memories, like my son growing up. I've also noticed small twitches that are accompanied by a vibrating feeling in my head it starts from the bottom and heads towards the top and usually on the right side. Also been feeling like I am constantly in a dream(dissociated) It's been very hard on me and it is drastically effecting my life :( All advice/experiences like mine would be greatly appreciated.

Comments

I thought it was the meds

Submitted by ashleyadamwatts on Tue, 2016-04-26 - 13:45
I thought it was the meds also but this has been happening for fours years and switched my meds 3 times Depakote since I was 11. I stopped Depakote at 23 when I found out I was pregnant. I switched to keppra and after my pregnancy I started Lamictal  thinking it was the meds but no change :(

thank you very much:) I have

Submitted by ashleyadamwatts on Wed, 2016-04-27 - 18:24
thank you very much:) I have been having a hard time with my doctor because it seems like he doesn't care like he brushes it off and just says "yea its seizures" yet he wont help me find out what exactly going on because I haven't had any seizures that are obvious maybe its a kind that you don't notice??? We talked about dosage change but he wants me to stay at the dosage I'm on but its been scary memory wise:/ no I didn't see that ill have to check that outThank you! :)

I'm not sure what that is but

Submitted by ashleyadamwatts on Wed, 2016-04-27 - 18:25
I'm not sure what that is but I will look at your post and check it out:)

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