My epilepsy is scaring me

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My epilepsy is starting to scare me. I was diagnosed with epilepsy about 12 years ago, when I was 8. At the time I was about 17 I was told I was epilepsy free and I could stop taking my medication. Everything was fine for a couple of years, with only the odd absent seizure (which I had from time to time anyways) but that all changed back in October. I work at a Halloween store and last year the management wasn't very good and our team was a disaster and I got extremely stressed out. I'm not going to bore you with the details but there were a few times I contemplated suicide, but didn't want my good coworkers to deal with halloween by themselves. During that time I also wasn't eating very healthy, mostly living off of fast food. That's when my collapsing started. It was really scary the first time, I was bringing my dog in, and suddenly I felt nauseous and heavy. I fell and I couldn't move at all. Like I couldn't even wiggle my toes. I laI'd on the ground for about ten minutes before I was able to drag myself to the bathroom,still unable to move my legs, and throw up. It took a full half hour before I could move enough to put my pup in his crate for the night and get to bed. Thw next day at work I had two seizures. In the past the only seizures I had had were during surgery, but I was able to alert someone quick enough. In the following two days I had three more seizures. I got back on my meds that week, 250mg of valporic acid twice daily, the same prescription I had been on since I was 9, and that helped? But not really. From the end of October till February I was on medical leave. I would collapse anywhere from 5-30 times per day leaving me unable to move from anywhere from 30 seconds to 30 minutes, and, as most 20 year old know, theres not much work besides retail and when you collapse constantly that makes it worse. I also had to put off going back to school because of it since I was going for hair and makeup and both programs requine a lot of standing. Things started to look up in February, my step mom got me a job at a collections agency, and I love it so much! But two weeks ago I had three seizures in two days and then yesterday I had two more, one of which was extremely violent and I stopped breathing during it and afterwards it took 5 hours to be able to speak. Works been helpful, they got me an anti glare screen and they haven't fired me despite me missing 5 days in the month and a half I've been there. My doctor, finally realizing my meds hadn't been updated in years, doubled my prescription to 500mg of valporic acid twice daily. I'm so scared I don't know whats happening. I know that some of you have epilepsy far worse than mine so this probably doesn't seem like a big thing, but I don't know what to do anymore. Like on the bright side, at least I'm finally remembering to take my pills constantly

Comments

I just wrote this to someone

Submitted by Kernkraft on Tue, 2017-04-04 - 03:19

I just wrote this to someone on a different subject header but I hope there are some bits you can take from it to help yourself, am sorry to hear the state of your epilepsy and I know how bad it can make you feel and so alone sometimes, but it can get better, and I really hope it does for you.

I just wrote this to someone

Submitted by Kernkraft on Tue, 2017-04-04 - 03:19

I just wrote this to someone on a different subject header but I hope there are some bits you can take from it to help yourself, am sorry to hear the state of your epilepsy and I know how bad it can make you feel and so alone sometimes, but it can get better, and I really hope it does for you.

Copied*Hi there, I was

Submitted by Kernkraft on Tue, 2017-04-04 - 03:19

Copied*Hi there, I was diagnosed myself with Nocturnal Epilepsy back when I was 12, I am now 29. I was too prescribed Epilim 500, only to be changed to Epilim Chrono (Slow release and less sharp impact). But in all honesty they seemed to have a worse effect on me, from random moods to exactly the same, sometimes a decreased libido. I also found the Sodium Valproate gave me issues with my gums also.But I chose to look into other areas, and in all honesty, for our situation, I would really recommend either dosing with a small amount of cannabis before bed time, or even better look into cannabidiol, cbd/cbg oil. The first one is obviously a matter of your opinions on cannabis having a psychoactive effect, but with small enough dosing it doesn't effect too much and also helps you sleep, adding to the healing benefit.I have not long ago started with cbd oil (have been using one designed for vaporisers from Canavape.uk) and it has been helping dramatically and also means I can medicate in public without any trouble as it is legal. Also canabidol.com do different dosage ways of taking, where they have a dissolvable gel tab that you put under your tongue so no psychoactive effect and you can get on with your day.I only suggest these highly as when I was younger I was told I would be on my medication for the rest of my life, but thanks to doing with either cannabis or canabidiol oil I have been off my medication for nearly over 2 years now.Have I still had an occasional seizure... Yes... Have they been my own fault because of my own tobacco and caffeine consumption mixed with long hours on digital devices and games... very much so yes. But on the plus side, my moods are far better, and my libido is far more active as a result.I hope this helps in some way as from my own trial and errors I can say, I had to get a hold on my lifestyle choices, control my sleep better, try to lower exposure to digital devices (I also got a Pc monitor with a 1ms delay on it so it minimises the flashes on the screen to pretty much non existent.And if you drink coffee, (or tea, as long as it contains caffeine) try to keep it to a minimum, and try and make it so you have at least eaten and it's not on an empty stomach. I have found over the years, the better you treat your body, the better they become, have herbal teas, do meditation, just live better. But on a sub note, the better you treat your body, if you do go off the rails, it will kick you in the a** a lot harder.I'm not shy to admit that I experimented with other psychedelics years ago (down to social groups and situation) and while they can be fun, ultimately I have had my worst seizures because of it, almost as if karma was giving me a damn good kicking for knowing better than to do that to myself. But now I am doing nice and steady and lead quite a clean life with smoothies and handy breakfast shakes I make myself that give me good enough staples for the day to work with and you start feeling so much better. Personally I don't like "medications" as they come with a lot of other side effects that are not worth the hassle. So I would really reccomend the more natural way for something that sounds very similar to what I have.P.s to note, my epilepsy was originally bought on by heat and stress when my parents took me abroad at 12, and my epilepsy is based off me having more electrical activity in the right side of my brain compared to the left, so if I get tired or stressed, or get shock awakenings, then the left side depletes and the right side tries to compensate sending a spark across my brain and causing them.I hope I have helped you in some way or give you some ideas of where better to aim for, as it has taken some serious trial and error and some emotion causing seizures to get to the point where I am now, and one main thing I've learned, if you think it may be bad for you, it probably is, and knowing better seems to make you subliminally cause it in your-self.I follow a programme called the Modern Day Viking which is the aim to be the best version of yourself, which also helps boost in your libido area cause you feel like a boss and approach it as such.Feel free to message me with any other questions as this is the first time I've seen another describing the same symptoms as me. All the best to you

Copied*Hi there, I was diagnosed myself with Nocturnal Epilepsy back when I was 12, I am now 29. I was too prescribed Epilim 500, only to be changed to Epilim Chrono (Slow release and less sharp impact). But in all honesty they seemed to have a worse effect on me, from random moods to exactly the same, sometimes a decreased libido. I also found the Sodium Valproate gave me issues with my gums also.But I chose to look into other areas, and in all honesty, for our situation, I would really recommend either dosing with a small amount of cannabis before bed time, or even better look into cannabidiol, cbd/cbg oil. The first one is obviously a matter of your opinions on cannabis having a psychoactive effect, but with small enough dosing it doesn't effect too much and also helps you sleep, adding to the healing benefit.I have not long ago started with cbd oil (have been using one designed for vaporisers from Canavape.uk) and it has been helping dramatically and also means I can medicate in public without any trouble as it is legal. Also canabidol.com do different dosage ways of taking, where they have a dissolvable gel tab that you put under your tongue so no psychoactive effect and you can get on with your day.I only suggest these highly as when I was younger I was told I would be on my medication for the rest of my life, but thanks to doing with either cannabis or canabidiol oil I have been off my medication for nearly over 2 years now.Have I still had an occasional seizure... Yes... Have they been my own fault because of my own tobacco and caffeine consumption mixed with long hours on digital devices and games... very much so yes. But on the plus side, my moods are far better, and my libido is far more active as a result.I hope this helps in some way as from my own trial and errors I can say, I had to get a hold on my lifestyle choices, control my sleep better, try to lower exposure to digital devices (I also got a Pc monitor with a 1ms delay on it so it minimises the flashes on the screen to pretty much non existent.And if you drink coffee, (or tea, as long as it contains caffeine) try to keep it to a minimum, and try and make it so you have at least eaten and it's not on an empty stomach. I have found over the years, the better you treat your body, the better they become, have herbal teas, do meditation, just live better. But on a sub note, the better you treat your body, if you do go off the rails, it will kick you in the a** a lot harder.I'm not shy to admit that I experimented with other psychedelics years ago (down to social groups and situation) and while they can be fun, ultimately I have had my worst seizures because of it, almost as if karma was giving me a damn good kicking for knowing better than to do that to myself. But now I am doing nice and steady and lead quite a clean life with smoothies and handy breakfast shakes I make myself that give me good enough staples for the day to work with and you start feeling so much better. Personally I don't like "medications" as they come with a lot of other side effects that are not worth the hassle. So I would really reccomend the more natural way for something that sounds very similar to what I have.P.s to note, my epilepsy was originally bought on by heat and stress when my parents took me abroad at 12, and my epilepsy is based off me having more electrical activity in the right side of my brain compared to the left, so if I get tired or stressed, or get shock awakenings, then the left side depletes and the right side tries to compensate sending a spark across my brain and causing them.I hope I have helped you in some way or give you some ideas of where better to aim for, as it has taken some serious trial and error and some emotion causing seizures to get to the point where I am now, and one main thing I've learned, if you think it may be bad for you, it probably is, and knowing better seems to make you subliminally cause it in your-self.I follow a programme called the Modern Day Viking which is the aim to be the best version of yourself, which also helps boost in your libido area cause you feel like a boss and approach it as such.Feel free to message me with any other questions as this is the first time I've seen another describing the same symptoms as me. All the best to you 

Copied*Hi there, I was diagnosed myself with Nocturnal Epilepsy back when I was 12, I am now 29. I was too prescribed Epilim 500, only to be changed to Epilim Chrono (Slow release and less sharp impact). But in all honesty they seemed to have a worse effect on me, from random moods to exactly the same, sometimes a decreased libido. I also found the Sodium Valproate gave me issues with my gums also.But I chose to look into other areas, and in all honesty, for our situation, I would really recommend either dosing with a small amount of cannabis before bed time, or even better look into cannabidiol, cbd/cbg oil. The first one is obviously a matter of your opinions on cannabis having a psychoactive effect, but with small enough dosing it doesn't effect too much and also helps you sleep, adding to the healing benefit.I have not long ago started with cbd oil (have been using one designed for vaporisers from Canavape.uk) and it has been helping dramatically and also means I can medicate in public without any trouble as it is legal. Also canabidol.com do different dosage ways of taking, where they have a dissolvable gel tab that you put under your tongue so no psychoactive effect and you can get on with your day.I only suggest these highly as when I was younger I was told I would be on my medication for the rest of my life, but thanks to doing with either cannabis or canabidiol oil I have been off my medication for nearly over 2 years now.Have I still had an occasional seizure... Yes... Have they been my own fault because of my own tobacco and caffeine consumption mixed with long hours on digital devices and games... very much so yes. But on the plus side, my moods are far better, and my libido is far more active as a result.I hope this helps in some way as from my own trial and errors I can say, I had to get a hold on my lifestyle choices, control my sleep better, try to lower exposure to digital devices (I also got a Pc monitor with a 1ms delay on it so it minimises the flashes on the screen to pretty much non existent.And if you drink coffee, (or tea, as long as it contains caffeine) try to keep it to a minimum, and try and make it so you have at least eaten and it's not on an empty stomach. I have found over the years, the better you treat your body, the better they become, have herbal teas, do meditation, just live better. But on a sub note, the better you treat your body, if you do go off the rails, it will kick you in the a** a lot harder.I'm not shy to admit that I experimented with other psychedelics years ago (down to social groups and situation) and while they can be fun, ultimately I have had my worst seizures because of it, almost as if karma was giving me a damn good kicking for knowing better than to do that to myself. But now I am doing nice and steady and lead quite a clean life with smoothies and handy breakfast shakes I make myself that give me good enough staples for the day to work with and you start feeling so much better. Personally I don't like "medications" as they come with a lot of other side effects that are not worth the hassle. So I would really reccomend the more natural way for something that sounds very similar to what I have.P.s to note, my epilepsy was originally bought on by heat and stress when my parents took me abroad at 12, and my epilepsy is based off me having more electrical activity in the right side of my brain compared to the left, so if I get tired or stressed, or get shock awakenings, then the left side depletes and the right side tries to compensate sending a spark across my brain and causing them.I hope I have helped you in some way or give you some ideas of where better to aim for, as it has taken some serious trial and error and some emotion causing seizures to get to the point where I am now, and one main thing I've learned, if you think it may be bad for you, it probably is, and knowing better seems to make you subliminally cause it in your-self.I follow a programme called the Modern Day Viking which is the aim to be the best version of yourself, which also helps boost in your libido area cause you feel like a boss and approach it as such.Feel free to message me with any other questions as this is the first time I've seen another describing the same symptoms as me. All the best to you

My epilepsy is scaring me

Comments

I just wrote this to someone

Submitted by Kernkraft on Tue, 2017-04-04 - 03:19

I just wrote this to someone

Submitted by Kernkraft on Tue, 2017-04-04 - 03:19

Copied*Hi there, I was

Submitted by Kernkraft on Tue, 2017-04-04 - 03:19

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