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Moving and don't know what to do...

Tue, 06/12/2007 - 00:13
I started having simple partial and complex partial seizures two years ago. I take Lamictal and Lexapro which completely controlls my seizures. I have a great neuro who specializes in epilepsy. Everything has been going good since being on my current medication. My problem is that I will be moving out of state to attend grad school and I'm concerned about finding a new neuro and staying on my meds. All my EEG's have been normal and I've heard of some neuros not believing you have seizures if you have normal tests. I'm afraid I won't find a neuro as good as the one I have now. I don't even know how to go about finding another neuro who specializes in seizures and I'm afraid it might take a while before I find a job and the new insurance takes affect. I've considered not even going because of this, but I don't want my seizures to stop me from doing anything. This is something I've waited a long time for and I finally found a good school that I like and they have offered me a graduate assistantship. I guess what I'm trying to say is that I am scared of leaving because of my seizures. I was wondering if anyone else has been through this situation before and has any advice.

Comments

Re: Moving and don't know what to do...

Submitted by jacky99 on Tue, 2007-06-12 - 02:10
don't let this stop you if you want to go to school. ask your neuro to refer you to another neuro where you are moving to. they can give all your information over. if you let this stop you from doing what you want who's to say that you will let it stop you from doing something else.

Peaches, Where are you going

Submitted by Matthew Simington on Tue, 2007-06-12 - 20:29
Peaches, Where are you going to graduate school? If you are near a big city, you can see what hospitals are there and whether any of them have epilepsy centers. Then you can call the hospital, they have special referral nurses you can talk to who can give you the number of an epileptologist there. You may have to wait several months to see a top doctor at a big hospital, but you can usually get an appointment with a junior doctor sooner. Your current doctor might also have some contacts, ask him about it. If you have family where you are now, you could arrange to see your current doctor while on vacation. Usually you have to pay for insurance or prove that you have insurance to register for classes. If you buy the insurance the school offers, it should take effect immediately. There might be some "pre-existing condition" issues as far as what it covers, but the school insurance should at least take care of meds and emergencies. The school should have an insurance rep/nurse/councelor you can call and ask questions to. My school insurance took care of everything last year. I would really love to correspond with you about this. I have had varying degrees of success in school. I have had 7 and 1/2 years of college. I have a BA in Liberal Arts. Last year (2005-2006) I went to graduate school, but got sick, finished the year fine, and then couldn't afford to return the next year. I was accepted last month to another program, but without any funding. I plan to apply for PhD programs next year. I am very frustrated at this point. I have been in school for so long, but can't get a suitable job because I don't have experience or a degree. My epilepsy got real bad last year, and is better now, but I am on a bunch of meds, and I am afraid that I will never be able to study again (memory, fatigue, etc.). I will press on, but I wish I had a better strategy for success. I made a post a while ago asking people going to graduate school how they cope with all the problems that epilepsy, medication, and the rigors of study. When I got sick at school one good thing it lead to was to an appointment to get nueuropsychological testing done. The results and suggestions promised to help me out a lot in school. I think the biggest things to remember are to get a comfortable place to stay near campus, eat healthy, don't take too many classes, don't work too much, and get enough sleep. ...oh, and have some fun sometimes. One thing I would do is make sure that your professors know about your condition. A visit to the school disabilities office *might* help. I don't think that you should worry too much about the EEG thing. A good doctor, especially an epileptologist, should not be fixated on that to the exclusion of everything else. I have a similar situation. If things don't work out well with one doctor, see another one. It may take some time. Sincerely, Matthew Simington msimington@juno.com

Re: Peaches, Where are you going

Submitted by Peaches78 on Tue, 2007-06-12 - 21:48
I have a BA in Psychology and I will be getting my MA in Clinical Psychology. I live in Arkansas now, but will be going to school in Dartmouth, MA. So I will be far away from home. Boston is only an hour away and Providence, RI is about thirty minutes so I'm sure I can find a doctor there, its just finding a good one that will take the time to listen to me that worries me. Where did you go to school? It's funny you say the disabilities office might help because I actually got a graduate assistantship working in there because of all my experience working with people with developmental disabilities. I thought about asking the director if she could help me. She is disabled herself. I don't know if she has seizures or not but I'm sure she would understand. I don't know about telling my professors about my seizures though. I don't like many people knowing about it, plus I don't want any special treatment. My insurance I have now should last about three monthes after I quit and move up there. I hope to find another job and get insurance through them, also MA law requires that I have insurance so part of my fees is the insurance payment so I will have insurance through school unless I prove I have insurance through a job. So either way it goes, I will be insured. Thanks for the advice. Its nice to hear from someone who has been there. My email address is ekm5678@yahoo.com if you want to correspond with me about this.

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