Community Forum Archive
The Epilepsy Community Forums are closed, and the information is archived. The content in this section may not be current or apply to all situations. In addition, forum questions and responses include information and content that has been generated by epilepsy community members. This content is not moderated. The information on these pages should not be substituted for medical advice from a healthcare provider. Experiences with epilepsy can vary greatly on an individual basis. Please contact your doctor or medical team if you have any questions about your situation. For more information, learn about epilepsy or visit our resources section.
Looking for your input
Thu, 03/09/2006 - 10:06Hello everyone:
I'm a student in the Science Communication program at Drexel University. I am currently taking a medical journalism class, and for my final project I am writing an article about the issues surrounding life with epilepsy. I have partial seizures myself, so this project is quite personal to me. I was wondering if any of you out there would be interested in sharing your stories, thoughts, opinions, etc. I am particularly interested in the issues or barriers that epilepsy has created in your own life, and how you think online forums and blogging can help people with epilepsy.
Thanks
Comments
Re: Looking for your input
Submitted by Jana33 on Thu, 2006-03-09 - 17:38
You are so right about having a good spouse by your side. I'm very lucky to have my wife she take care of me and do what ever she have to do. I feel upset because I dont like to depend on people and I hate I can't drive right now. I never had any problem with depression until I started to be sick and all the differents meds I have to take now.
Re: Re: Looking for your input
Submitted by darlyn on Tue, 2006-03-14 - 09:21
Yes, you're lucky to have a good person beside you to help you when you need it. But I know you don't FEEL to lucky when you have to depend on someone else. I didn't see your story anywhere, so I don't know your situation. But I can imagine it is similar to one of many stories told on this website. Some of us are luckiers than others. But one thing most of us have in common is the fact that we are tied down with the prescription drugs we have to take. There are so many side effects that I would rather not have to deal with. But until we find a better way to manage our situation, we have to put up with those things. Kinda makes me feel like I'm at a major disadvantage when it comes to a lot of things, like aspiring to a higher level in my career. I don't trust my brain to help me along. I've got memory problems myself and I don't like any of the antiseizure medications I've used. But on the other hand, I've had grand mal and petit mal seizures since 1981 and I'm still able to work. I did not have children, but I've got a great husband to share my life with. Tell me about you.
Re: Looking for your input
Submitted by spazz on Thu, 2006-03-09 - 10:36
kat, after having to give up my career and stay at home the biggest barrier I have found is the depression it can cause by not having that much outside contact and feeling lonely. I've just started to feel this way and am in the process of trying to find volunteer work. After finding out you have epilepsy most people are reluctent to give you a job do to the liability. I never had a problem with depression when I was working so I can only assume that it is being caused by being alone all day.I do have a wonderful spouse who is very understanding and helps me the best she can.but sometimes I can tell the toll it is taking on her. thank god she is a firm believer in the sickness and health vow. most people would have bailed by now. spaz (craig)