Community Forum Archive
The Epilepsy Community Forums are closed, and the information is archived. The content in this section may not be current or apply to all situations. In addition, forum questions and responses include information and content that has been generated by epilepsy community members. This content is not moderated. The information on these pages should not be substituted for medical advice from a healthcare provider. Experiences with epilepsy can vary greatly on an individual basis. Please contact your doctor or medical team if you have any questions about your situation. For more information, learn about epilepsy or visit our resources section.
Living with it
Mon, 09/18/2017 - 17:02Hey guys. I have visual seizures maybe once a month, where I lose focus in my vision and keep swallowing over and over again while having a bunch of random thoughts (none violent or anything, just really random). I'm trying to find the right meds but so far I haven't found one that worked. My doctor's best guess is tuberous sclerosis. I'm starting to believe that I'm just going to have to learn to live my best life with my epilepsy, but it's hard, because the thought of having a seizure gives me so much anxiety and it basically ruins my day. I have no idea how to deal with it and accept it and I feel so alone.
Wow.....I understand how you
Submitted by cancun01 on Mon, 2017-09-18 - 23:13
Wow.....I understand how you feel!