Life is hard with seizures

I read your post You have been having brakthru seizures. OK Have yo ubeen to a neurologist to see what can be done? If you have what did he say? Did you get put back on meds? Is so when? If you have have your seizures reduced any/ When will your next appt with your neurologist be since dosages need to be raised or lowered in order to get your seizures under control. I have partial seizures and also have focal seizures. I go where I want and IF I have a seizure with the medications I take today most people would not know I had one. You set on the couch way?? is there something to do on the couch. Can you still play with your son? Do you go outside? Have you called any of your friends?  Those are questions you need answers to. Just because you now have seizures does not mean your life is over. If you were to start teaching go ahead and teach. There are other ailments that people have and they still do what they want. Do people with diabeties teach. Do people with heart ailments teach? what about people with a hearing condition? Or people in a wheel chair??  I went 3+ years without any seizures. I was studing for my drivers license. I didn't take it because I had a seizure. I still don't have a drivers license. Has it kept me from playing with the kids? NO has it kept me from taking them to the zoo? NO Or to a put put golf course? NO. I have had partial seizures while playing with them. Does it bother them? In some ways it did until they understood it was just a short time in a day which has many minutes. I told them I would be fine after a few minutes. Guess what I was and we finished playing put put golf. Andrew wants to ride go carts. He rode in them and his sister and I watched. Andrew watched her as she rode a ride she wanted to ride. They were fine and have grown into young adults. It is your decission to make Do you want to teach and fulfill your dream or sit on the couch?  When you see your neurologist next time ask him questions and answer his truthfully. I always asked mine more questions then they asked me. Is this the best medication for my kind of seizures? Why am I still having seizures even tho the number has been reduxced? What would happen if we raised or reduced the dosage? Is there a medication that can be coupled with this medication that will help control my seizures better? Is there a medication that is better at controlling my seizures/  By asking questions like these he sees you want to control your seizures better. By seeing that he will start  thinking more about medications. dosages and procedures that can help control your seizures better. By asking these and other questions I have been getting better control of my seizures. Newer medications today are far better then they were 15 years ago. back then my partial seizures lasted 2-4 minutes and time to focus was 15-45 ,imutes. Now that time is 2-4 seconds in the seizure and focus time is 4-8 seconds. The only way I have gotten the number of seizures reduced was by asking questions and working with my neurologists. By asking questions my medications have been changed several times. If one reduced the number I still wanted better control so we tried another. One of the meds I am onereduced the number of seizures I was having down to 2-4 a day to 2-4 a week. We coupled that medication with another and the same seizures have been reduced to 1 every 8-14 days. It has taken time and a lot of trial and error but we have done some great things with my epilepsy.  I have been blessed to not have had a convulsive seizure since 1970. It is hard trying to figure out what to do and which way to turn. I was diagnosed back in 1963. I had been having petite mal and focal seizures eor 1-2 years before that. The way I did things  was telling people to not treat me any different then they would treat other people. It took time and I did start thinking. All a seizure is to me is blips in time. My life has been long and even if those blips in time are taken out My life has been wonderful. Every person has something they have to deal with. With you and me it is epilepsy. With my Dad it was polio aand cancer. A dear friend has a heart condition. My cousin had breast cancer. She is a survivor as of last month. Mt mother has diabetites. So yes everybody has something to deal with.  Get off the couch and play with your son. Takew him to the zoo or to play in the park. Ride the bus OH and kids love to ride the rail it gives them something else to see. The mesum is another place or a aquarium. I hope you read this and take it the way I indended it to come out I also hope you get your seizures under control so you can go teach that class Joe

A lot of what I posted in my comment up there ^^^^ can be applied to most people. I do hope you and your neuologist get your seizures under control. I would also suggest you get teh My Epilepsy Diary. It is under the get help section. Watch the video which tells yo uhow to use it and what it can do. You can used the note pad to note anything different that happened on the day you had a seizure. By doing that you might find triggers which can cause seizures. Oh and as I posted up there ^^^ aske questions when you see your neurologist and if yo uget the dieary give him permission to bring it up he can bring up the graphs and other information which can help him come up with medications, dosages and procedures that can help control your seizures. I do hope you get your seizures under control and get seizure free Joe

I read your post You have been having brakthru seizures. OK Have yo ubeen to a neurologist to see what can be done? If you have what did he say? Did you get put back on meds? Is so when? If you have have your seizures reduced any/ When will your next appt with your neurologist be since dosages need to be raised or lowered in order to get your seizures under control. I have partial seizures and also have focal seizures. I go where I want and IF I have a seizure with the medications I take today most people would not know I had one. You set on the couch way?? is there something to do on the couch. Can you still play with your son? Do you go outside? Have you called any of your friends?  Those are questions you need answers to. Just because you now have seizures does not mean your life is over. If you were to start teaching go ahead and teach. There are other ailments that people have and they still do what they want. Do people with diabeties teach. Do people with heart ailments teach? what about people with a hearing condition? Or people in a wheel chair??  I went 3+ years without any seizures. I was studing for my drivers license. I didn't take it because I had a seizure. I still don't have a drivers license. Has it kept me from playing with the kids? NO has it kept me from taking them to the zoo? NO Or to a put put golf course? NO. I have had partial seizures while playing with them. Does it bother them? In some ways it did until they understood it was just a short time in a day which has many minutes. I told them I would be fine after a few minutes. Guess what I was and we finished playing put put golf. Andrew wants to ride go carts. He rode in them and his sister and I watched. Andrew watched her as she rode a ride she wanted to ride. They were fine and have grown into young adults. It is your decission to make Do you want to teach and fulfill your dream or sit on the couch?  When you see your neurologist next time ask him questions and answer his truthfully. I always asked mine more questions then they asked me. Is this the best medication for my kind of seizures? Why am I still having seizures even tho the number has been reduxced? What would happen if we raised or reduced the dosage? Is there a medication that can be coupled with this medication that will help control my seizures better? Is there a medication that is better at controlling my seizures/  By asking questions like these he sees you want to control your seizures better. By seeing that he will start  thinking more about medications. dosages and procedures that can help control your seizures better. By asking these and other questions I have been getting better control of my seizures. Newer medications today are far better then they were 15 years ago. back then my partial seizures lasted 2-4 minutes and time to focus was 15-45 ,imutes. Now that time is 2-4 seconds in the seizure and focus time is 4-8 seconds. The only way I have gotten the number of seizures reduced was by asking questions and working with my neurologists. By asking questions my medications have been changed several times. If one reduced the number I still wanted better control so we tried another. One of the meds I am onereduced the number of seizures I was having down to 2-4 a day to 2-4 a week. We coupled that medication with another and the same seizures have been reduced to 1 every 8-14 days. It has taken time and a lot of trial and error but we have done some great things with my epilepsy.  I have been blessed to not have had a convulsive seizure since 1970. It is hard trying to figure out what to do and which way to turn. I was diagnosed back in 1963. I had been having petite mal and focal seizures eor 1-2 years before that. The way I did things  was telling people to not treat me any different then they would treat other people. It took time and I did start thinking. All a seizure is to me is blips in time. My life has been long and even if those blips in time are taken out My life has been wonderful. Every person has something they have to deal with. With you and me it is epilepsy. With my Dad it was polio aand cancer. A dear friend has a heart condition. My cousin had breast cancer. She is a survivor as of last month. Mt mother has diabetites. So yes everybody has something to deal with.  Get off the couch and play with your son. Takew him to the zoo or to play in the park. Ride the bus OH and kids love to ride the rail it gives them something else to see. The mesum is another place or a aquarium. I hope you read this and take it the way I indended it to come out I also hope you get your seizures under control so you can go teach that class Joe