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im totally lost!!!!!!!

Mon, 07/17/2006 - 15:09
Ive just been told i got epilepsy and ive lost my car n cant drink anymore 2 things i have to say i liked and thought i needed. im not lookin 4 pity im just very lost and need some1 to talk to i dont have many seizures but it scares me! im on epilim 3 a day please can sum1 talk to me as im finding doctors useless.

Comments

Re: im totally lost!!!!!!!

Submitted by RamblinJScott on Mon, 2006-07-17 - 19:40
I understand you're not looking for pity which is a good thing cause you are not going to find any here :) But you will find a lot of people that understand what you are going through and what it feels like to lose your license and not be able to drink. I'm 45 and I feel like I am being treated like a 14 year old. I just found out I have E 4 months ago so it's all new to me too. Hit the chat room icon in the upper left hand corner and join the chats. Don't be afraid to jump in and ask your questions. Try it several times during the day cause there are always people on with diffeerent experiences and you can gain from each one of them. Also, you can help people with you experiences. Good luck, welcom, and know that you are among friends.

Re: im totally lost!!!!!!!

Submitted by maggie on Mon, 2006-07-17 - 19:46
Hello edel,Please come to the chat room sometime.We talk serious and sometimes we have some good laughs that really help to reduce the stress.I don't drink but I can relate to you about the driving.I also cannot drive.No one thinks of anyone on this site as to having a pit party.We all need each other for help and support.I also and many other peolpe have problems with their doctors,so you are not alone...believe me!Come chat and get what you want out in the open with people that are going through the same thing as you are.We all understand.Hope to see you in chat real soon.Good luck and God bless you.Your in my thoughts and prayers.....HUGS

Re: Re: im totally lost!!!!!!!

Submitted by eame on Mon, 2006-07-17 - 21:31
Edel, although I have not been officially diagnosed w/ Epilepsy, I had my first grand mal seizure or rather seizures in March of this year. I was initially placed on Dilantin but ended up on Depakote b/c I had an allergic reaction. I too was told that I needed to give up driving and that I could no longer drink not b/c of the seizures but b/c of the medication. To be honest, I don't know which saddened me most. It wasn't like I drank on a daily but I did go out w/ my friends every now and then and my fiancee and I are wine drinkers. I am not seeking pity either. One of the most difficult adjustments is just how much my lifestyle has changed as a result of what has yet to be diagnosed. I do continue to have petit mal and complex seizures. I find that I am constantly looking over my shoulder in a sense waiting for the next one. Even moreso b/c they have yet to determine what the trigger was which resulted in the grand mal seizures in the first place. They think it was lack of sleep and stress b/c both grand mals followed 2-3 days of being up darn near around the clock w/ my twins and not much sleep at all. I don't drive anymore and I never liked to rely on others for a ride not even my fiancee so I don't go out as much and even if I am able, I tend not to simply b/c I can't drink and being around my friends and watching them "get down" is too tempting. I will admit that I have taken an occasional sip simply b/c I don't have any other outlets. There is an annual wine fest in my area that my fiancee' and I have been going to for the last 4 years that I refused to miss. I just prayed before entering and told my friends to keep an eye on me. I had an absolute ball and did enjoy more than just a sip. I won't lie ...it's hard and here lately, I have been down more than up. It is just amazing how your life can be so normal and all of a sudden BAM, everything changes. I would've never thought this would ever be my story. Keep us posted on your progress.

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