I'm starting to do things that I have no memory of doing.

CDC funded page

Not a CDC funded Page

Up until this week, I was always aware that I was having a seizure while I was having one. This allowed me to sit down and safely wait for my confusion to clear-up.

But, this week I had a new type of seizure. I had just finished a normal run. I felt good, but because exercise increases my chance of seizures, I decided to stop. Rather than go directly home, I started walking to a drugstore to get some Gatorade and a little more excerise. My next memory is my being in bed 6 hours later.... I remember absolutely nothing about those 6 hours.

part of the forensic evidence is:

- I somehow convinced a stranger to let me use his mobile. His voice could be heard in the background when I called and left messages for my brother and father.

- The messages I left were perfectly natural. I explained that I had had a seizure. I told them exactly where I was and that I would begin walking home (which would take about 45-minutes). If they had the time, I asked them to come pick me up.

- They could not pick me up, so I ended up walking all the way home. I had to cross 3 busy streets to do this.

- I got home, unlocked the door, took off my running gear, took a shower, changed into t-shirt and shorts, got in bed, and then slept for 6 hours.

- I wake-up at midnight and am like "why am I in bed? wtf just happened?" I remember walking to the drugstore, and then nothing. Based on forensics, I conclude I must have had a new seizure.

The evidence suggests that for several hours, I was a walking / talking / thinking normal person. What has happened to me? Why do I have such complete memory loss?

Comments

welcome I read your post and

Submitted by just_joe on Sat, 2014-06-28 - 11:41

welcome I read your post and understand that you had a seizure and then something happened that you are confused about. You did not post the type of epilepsy you have nor did you post the type of seizures you have. You might have had a comlex partial seizure. In those a person can and do walk around and do things they don't konw they did. There are other seizures that things like that happen. I have seizures that while in them I know whats happening and I also respond to peoples questions and people would kno nothig about the seizure. Those seizures would last for longer periods of times 10-15 years ago. while I knew I had them at work I knew I got on the bus. I did not know how I got off the buss and in the house at times. So yes what you experianced could have been a seizure. If you know the type of epilepsy you have then ckeck the different types of seizures you can have and you might find complex partial seizures or other seizures that can do something like that. I do hope you get the assistance you need Joe

OK I have read your post and

Submitted by just_joe on Sat, 2014-06-28 - 14:28

OK I have read your post and this one. I also know what it is like to have to take medications. I have been doing that for 50+ years. I also know what it is like to have said something and not remember what was said. Litle bits and pieces do come to mind when trying to find out what happened. As for medications they all work to stop the seizures and thy do that. When you take your medications do you take them at the same time every day? If you take meds 2 times a day are those times 12 hours apart? Have you asked your neurologist about your dosages . Ilke is this dosage enought to control my seizures or do me need to raise it? Also know that too much medication is just as bad as not enough So another question might be is the dosage too high and causing seizures rather then reducing the number of seizures. Pleaase read about the types of seizures you cab have, Just because you have had the same kind of seizure does not mean you can't have others. Discuss this issue with your neurologist and ask him questions. For every question he asks you have 1-2 for him..What type of seizures can I have? Are there other medications that can control my seizures better? Is my dosage in this medication the right dosage or do we need to increase or decrease it? Is there a medication that can be coupled with this one that could help control my seizures? There are others but start with those and get answers. As I asked questions the neurologists started seeing I wanted to control my seizures and not let my seizures control me, We have changed medication and dosages and in the last 10+ years I have been on keppra. In that time my seizures have been reduced. The time in the seizures and the time to get back to normal has cahnged dramatically. What ised to be 2-8 minutes in the seizure is now 2-5 seconds. The time to focus went from 15-45 minutes down to 2-8 seconds. Most neurologist would count my epilepsy controlled since I have one every 8-14 days and they are focla or simple partial. Doc and I would like to see if we can get total control and that has been happening. I may never get it but I want to try. I have been living and dealing with epilepsy for 50+ years so I do knopw what some people go thru. I do hope you get the assistance you need and do come back and let us know how things are going. Joe

OK I have read your post and this one. I also know what it is like to have to take medications. I have been doing that for 50+ years. I also know what it is like to have said something and not remember what was said. Litle bits and pieces do come to mind when trying to find out what happened. As for medications they all work to stop the seizures and thy  do that. When you take your medications do you take them at the same time every day? If you take meds 2 times a day are those times 12 hours apart? Have you asked your neurologist about your dosages . Ilke is this dosage enought to control my seizures or do me need to raise it? Also know that too much medication is just as bad as not enough So another question might be is the dosage too high and causing seizures rather then reducing the number of seizures.  Pleaase read about the types of seizures you cab have,  Just because you have had the same kind of seizure does not mean you can't have others. Discuss this issue with your neurologist and ask him questions. For every question he asks you have 1-2 for him..What type of seizures can I have? Are there other medications that can control my seizures better? Is my dosage in this medication the right dosage or do we need to increase or decrease it? Is there a medication that can be coupled with this one that could help control my seizures?  There are others but start with those and get answers. As I asked questions the neurologists started seeing I wanted to control my seizures and not let my seizures control me, We have changed medication and dosages and in the last 10+ years I have been on keppra. In that time my seizures have been reduced. The time in the seizures and the time to get back to normal has cahnged dramatically. What ised to be 2-8 minutes in the seizure is now 2-5 seconds. The time to focus went from 15-45 minutes down to 2-8 seconds. Most neurologist would count my epilepsy controlled since I have one every 8-14 days and they are focla or simple partial. Doc and I would like to see if we can get total control and that has been happening. I may never get it but I want to try. I have been living and dealing with epilepsy for 50+ years so I do knopw what some people go thru. I do hope you get the assistance you need and do come back and let us know how things are going. Joe  

OK I have read your post and this one. I also know what it is like to have to take medications. I have been doing that for 50+ years. I also know what it is like to have said something and not remember what was said. Litle bits and pieces do come to mind when trying to find out what happened. As for medications they all work to stop the seizures and thy do that. When you take your medications do you take them at the same time every day? If you take meds 2 times a day are those times 12 hours apart? Have you asked your neurologist about your dosages . Ilke is this dosage enought to control my seizures or do me need to raise it? Also know that too much medication is just as bad as not enough So another question might be is the dosage too high and causing seizures rather then reducing the number of seizures. Pleaase read about the types of seizures you cab have, Just because you have had the same kind of seizure does not mean you can't have others. Discuss this issue with your neurologist and ask him questions. For every question he asks you have 1-2 for him..What type of seizures can I have? Are there other medications that can control my seizures better? Is my dosage in this medication the right dosage or do we need to increase or decrease it? Is there a medication that can be coupled with this one that could help control my seizures? There are others but start with those and get answers. As I asked questions the neurologists started seeing I wanted to control my seizures and not let my seizures control me, We have changed medication and dosages and in the last 10+ years I have been on keppra. In that time my seizures have been reduced. The time in the seizures and the time to get back to normal has cahnged dramatically. What ised to be 2-8 minutes in the seizure is now 2-5 seconds. The time to focus went from 15-45 minutes down to 2-8 seconds. Most neurologist would count my epilepsy controlled since I have one every 8-14 days and they are focla or simple partial. Doc and I would like to see if we can get total control and that has been happening. I may never get it but I want to try. I have been living and dealing with epilepsy for 50+ years so I do knopw what some people go thru. I do hope you get the assistance you need and do come back and let us know how things are going. Joe

OK I kow what you want and I

Submitted by just_joe on Sun, 2014-06-29 - 10:32

OK I kow what you want and I also know what a doctor of any kind wants. Think about a issue that there is no cure for. Do you have it? if there is no cure what are doctors to do? They take an oath to heal people as best they can. Now I also do not like taking drugs. I hated taking them and still don't want to take them. I also know what happened to me when I didn't take said drugs. You might want to do some research. As a person ages their seizures get worse if not treated. I also know that if a person gets off meds without the doctor knowing it they can go into status epilepticus which is one seizure after another. Would you like to be having back to back grand mal seizzures to the tune of 40 convulsive seizures an hour??? That is what happened to me. There was no 911 when that happened. We had to wait for a neighbor to get home from work before they could get me in the back of a station wagon so I wouldn't hit the driver. Those seizures started about 10 pm the station wagon got to our place at 5 am.. So do some math. A person can be bright out of status and I was. But before Mom got back I went into it again. All I can remember is leaving Mom's house on my way home at about 9:45 pm the next time was 3 days later when I came too. [me]: "I want to improve the quality of my life. I will happily accept a higher risk of having seizures to achieve this. As a starting point, I want to take no drugs, and see what happens. As needed, I'll start taking drugs at a low dose. Let's work until I am taking minimal doses of as few drugs as possible." OK this is what you want. Can you fix or stop the electrical impulse going off wrong in your brain causing a chain reaction??? If yo ucan then tell us how. I say that because a seizure is just that. everything you do is going through your brain. If there is an electrical impulse going off wrong the chain reaction is the seizure. So will you fix scared brain tissue? What will fix a growth deformaity? what will fix the tissue that was in a high fevor? you see there are many things that can't be repaired so easily. Yes taking care of your body does help. But you do not know what is causeing your epilepsy so where do you start especially qwhen you have not experianced all the 40+ different types of seizxures. If you had a particular type of seizure while not on any drugs, something awful might happen." If a neurologist were to discover a drug combo that completely cured my epilepsy, but also destroyed me psychologically and physically, he / she would be convinced that they had done a great job. I hope you geet the assistance you need. Joe

OK I kow what you want and I also know what a doctor of any kind wants. Think about a issue that there is no cure for. Do you have it? if there is no cure what are doctors to do? They take an oath to heal people as best they can. Now I also do not like taking drugs. I hated taking them and still don't want to take them. I also know what happened to me when I didn't take said drugs. You might want to do some research. As a person ages their seizures get worse if not treated. I also know that if a person gets off meds without the doctor knowing it they can go  into status epilepticus which is one seizure after another. Would you like to be having back to back grand mal seizzures to the tune of 40 convulsive seizures an hour??? That is what happened to me. There was no 911 when that happened. We had to wait for a neighbor to get home from work before they could get me in the back of a station wagon so I wouldn't hit the driver. Those seizures started about 10 pm the station wagon got to our place at 5 am.. So do some math. A person can be bright out of status and I was. But before Mom got back I went into it again. All I can remember is leaving Mom's house on my way home at about 9:45 pm the next time was 3 days later when I came too. [me]: "I want to improve the quality of my life. I will happily accept a higher risk of having seizures to achieve this. As a starting point, I want to take no drugs, and see what happens. As needed, I'll start taking drugs at a low dose. Let's work until I am taking minimal doses of as few drugs as possible." OK this is what you want. Can you fix or stop the electrical impulse going off wrong in your brain causing a chain reaction??? If yo ucan then tell us how. I say that because a seizure is just that. everything you do is going through your brain. If there is an electrical impulse going off wrong the chain reaction is the seizure. So will you fix scared brain tissue? What will fix a growth deformaity? what will fix the tissue that was in a high fevor? you see there are many things that can't be repaired so easily. Yes taking care of your body does help. But you do not know what is causeing your epilepsy so where do you start especially qwhen you have not experianced all the 40+ different types of seizxures. If you had a particular type of seizure while not on any drugs, something awful might happen."  If a neurologist were to discover a drug combo that completely cured my epilepsy, but also destroyed me psychologically and physically, he / she would be convinced that they had done a great job.  I hope you geet the assistance you need. Joe

OK I kow what you want and I also know what a doctor of any kind wants. Think about a issue that there is no cure for. Do you have it? if there is no cure what are doctors to do? They take an oath to heal people as best they can. Now I also do not like taking drugs. I hated taking them and still don't want to take them. I also know what happened to me when I didn't take said drugs. You might want to do some research. As a person ages their seizures get worse if not treated. I also know that if a person gets off meds without the doctor knowing it they can go into status epilepticus which is one seizure after another. Would you like to be having back to back grand mal seizzures to the tune of 40 convulsive seizures an hour??? That is what happened to me. There was no 911 when that happened. We had to wait for a neighbor to get home from work before they could get me in the back of a station wagon so I wouldn't hit the driver. Those seizures started about 10 pm the station wagon got to our place at 5 am.. So do some math. A person can be bright out of status and I was. But before Mom got back I went into it again. All I can remember is leaving Mom's house on my way home at about 9:45 pm the next time was 3 days later when I came too. [me]: "I want to improve the quality of my life. I will happily accept a higher risk of having seizures to achieve this. As a starting point, I want to take no drugs, and see what happens. As needed, I'll start taking drugs at a low dose. Let's work until I am taking minimal doses of as few drugs as possible." OK this is what you want. Can you fix or stop the electrical impulse going off wrong in your brain causing a chain reaction??? If yo ucan then tell us how. I say that because a seizure is just that. everything you do is going through your brain. If there is an electrical impulse going off wrong the chain reaction is the seizure. So will you fix scared brain tissue? What will fix a growth deformaity? what will fix the tissue that was in a high fevor? you see there are many things that can't be repaired so easily. Yes taking care of your body does help. But you do not know what is causeing your epilepsy so where do you start especially qwhen you have not experianced all the 40+ different types of seizxures. If you had a particular type of seizure while not on any drugs, something awful might happen." If a neurologist were to discover a drug combo that completely cured my epilepsy, but also destroyed me psychologically and physically, he / she would be convinced that they had done a great job. I hope you geet the assistance you need. Joe