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Im a new person and an adult with epilepsy
Mon, 08/06/2007 - 14:10 I was reading a lot of your discussions deciding whether I even belonged here. Sounds like a lot of you have been living with epilepsy along time. I however have been living with seizures for 5 yrs. but did not get diagnosed until this past December. I have failed a lot of medications already but I'm already a surgery candidate. I have been in and out of hospitals in a short amount of time and people have directed me to websites such as this one for support. I come here and I start to read and it sounds like a free for all. Im truly looking for support not for someone to make fun of me. I truly believe that there are others like me that are looking on this site daily and are probably astounded at what they are reading?
Comments
Re: Im a new person and an adult with epilepsy
Submitted by Wreath on Mon, 2007-08-06 - 15:59
Welcome mel,
Please don't let the occasional "free for all" stop you from
coming here for support. Most of us are here for that same reason. Epilepsy has been part of my life for 42 years, but I just recently found out about this site. There is more positive than negative here, and I'd like to encourage you to continue.
Wreath
Re: Im a new person and an adult with epilepsy
Submitted by kathyc on Mon, 2007-08-06 - 17:13
Hi mel,
Please don't let a long neglected issue that just came to a head all at once, deter you from what is a very informative site with a lot of genuinely caring people. I came here myself seeking information for my husband who has had epilepsy for 35 years now, as a medication change was being made and found I needed support that I did not realize I needed. I have found that support here, as well as the information I was originally seeking. I also found friends. I hope you will find the information and support you are seeking here as well. I wish you well in finding either the correct medication or if you are in need of the surgery I hope it goes well for you and you make a speedy recovery. Please stay a while. I hope you too will come to find that this is basically a very caring and supportive group of people.
Best wishes,
Kathy
Re: Im a new person and an adult with epilepsy
Submitted by lisaltstheresa on Mon, 2007-08-06 - 14:24
There are many in the group that can be helpful. I am surprised to see that the admin dont delete that mess that is going on right now. What a pity! BUt I am here to support anyone including you if you need support. I have also been living with epilepsy for a long time. But it doesnt mean you dont belong. The longer you have it, the more info people can help you with. I also have been dealing with the change of meds and have tried everything. And now am retrying them with different combinations. I have been through surgeries also. But still I am not seizure. But many have become seizure free with surgery. I want to wish you the best. Lisa http://health.groups.yahoo.com/group/epilepsyapproach1/ http://www.sleep-safe.co.uk/id90.htm