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If I can do this, YOU can do this - don't give up

Tue, 12/06/2016 - 15:54
I was diagnosed with Temporal Lobe - partial complex seizures at age 29, I just started collecting S/S at age 62. That's 33 years. I was fortunate to have 2 understanding employers, worked 21 years for one and 20 years for another. The old Social Security guidelines for disability was , minimum 2 seizures a month, it was raised to 4 seizures a month so I had to keep working. It wasn't easy, I had my first seizure with a 2 yr old and a 1 month old at home. I totaled 2 cars before being properly diagnosed. After many years of volunteering for 8-9 drug pilot tests that didn't work, I signed up for a right temporal lobectomy and chickened out the day before surgery. After many years of falling down injuries, tongue biting,broken ribs, public humiliation. I take 1200 mg of tegritol RX and 3 Mg of Ativan . Now 1-2 seizures a month , retired and life is calm, no more buses and trains in the winter. I got a part time job working from my computer at home 4 hours a day that gives me a reason to get going in the morning. Get sleep at all cost. If I didn't sleep , I didn't go to work, it would be almost certain to have a seizure. Then my employer allowed me to work at home the last 4 years 4 days a week.I have 4 grand children and another one on the way. I am not superman, you can do this. Don't get down on yourself and clearly understand what the doctors want to do. Talk to someone you trust before any surgery, but surgery may be the answer or might not be. I chose not to have surgery but that was a long time ago. Just don't give up

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