Community Forum Archive

The Epilepsy Community Forums are closed, and the information is archived. The content in this section may not be current or apply to all situations. In addition, forum questions and responses include information and content that has been generated by epilepsy community members. This content is not moderated. The information on these pages should not be substituted for medical advice from a healthcare provider. Experiences with epilepsy can vary greatly on an individual basis. Please contact your doctor or medical team if you have any questions about your situation. For more information, learn about epilepsy or visit our resources section.

Husband not accepting of my Epilepsy

Fri, 02/13/2015 - 17:06

I was diagnosed with Myoclonic Epilepsy a year ago and I cant seem to get my husband on the same page as me. When I had my Grand Mal last February he claimed afterwards that it was from "falling asleep on the potty." Now a year later and multiple medications, hes now saying that I would be fine if the stress was gone.  If that happened he thinks that I would be ok off my meds. I am currently having anywhere from 2-3 seizures a week, though they are petite mal or complex partial seizures. I know that I am having them, I don't think it would be smart for me to stop my medication but I cant get him to see eye to eye with me on this. Does anyone have any advice on how to get him to be accepting of the fact that I have epilepsy.

Comments

My step father had a problem

Submitted by just_joe on Sun, 2015-02-15 - 10:15
My step father had a problem with accepting my epilepsy. It wasn't until I had one in the living room while he was there. Rather then moving the coffee table he tried to hold me in place. I tossed him over my body. I was 13-14 and he weighed 215 lbs. We had a weight set and the whole set weighed 120 lbs and he knew I couldn't pick the bar bell and all the weights. Basically when a person is having a convulsive seizure their muscles are jerking with all the strength they have. After that episode he knew something was not right and he started checking things out. He read the essay I wrote and research more. I still had to do a chit load of stuff since he was a marine and I was under his roof.  But he looked at things in a different light. It took him more time then it did Mom and my brother but he did come arround.Most of the  reason people do not want to accept epilepsy is because of the stigma associated with epilepsy. That stigma is over 2000 years. Remember it was Cesar that had the "falling sickness"You might want to google or bing "famoud people that had epilepsy" many people would learn a lot if they saw the names on the list . I hope this helps

I will try the things yall

Submitted by jessf_gurl69101@yahoo.com on Thu, 2015-02-19 - 09:38
I will try the things yall have suggested thank you very much. I have had my neurologist go explain to him what all is going on and he goes to all these appointments with me as well. He was actually the one who set me up with my new neurologist, thinking he would tell me that it wasn't epilepsy. Only to find out that I was miss treated at the first neurologist  i went to and I had a lot more going on then just the Myoclonic seizures. Which is why it confesses me so much. There are times where hes very much ok with the fact and tells me to rest more and relax, but then other times its like come on we gotta do this this and this before we go do this. He'll sometimes get upset if I get tired and want to go to sleep when it gets late, because he works so early and stays up so late he thinks I can do it too. I just wish someone would give him a little reality as to what will happen if i don't get the proper rest and medication. I want him to understand that I could die and he'd be left to raise our daughter alone.

Jess it seems like your hubby

Submitted by nightfighter@nc.rr.com on Mon, 2015-03-09 - 07:50
Jess it seems like your hubby is really in denial. If this does cause problems he needs to understand that stress is a primary trigger for seizures. When he accepts the situation, the stress will be reduced which can "possibly" lead you to a more tolerable situation. Epilepsy is not you so try to not let it dominate your life. He needs to understand that you really have No , Nada , Zero choice in this situation 

Sign Up for Emails

Stay up to date with the latest epilepsy news, stories from the community, and more.