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Hi, my name is Dan
Wed, 03/08/2006 - 12:13My name is Dan Brown, and live with my bride of nearly 32 years, in a pasture in Elm Grove, LA. I was diagnosed about 3 and 1/2 years ago with "partial complex seizures of the left frontal lobe" and my life changed drastically. I don't know if the type I have is rare, common or what. I have had many problems and only through prayer have I survived. I draw "SS diabily" benifits, but I am still having problems with the meds I can tolerate and paranoia. Mostly since my seizures offer me zero clues of events occuring during the period between the actual short and my return to cognizance. I spend much time alone, and have no way of knowing of any unwitnessed episodes (called "Brown-outs" by a few friends) I have many theories about my arrival in this sad and embarrassed state, but I'll be around for a while, I suspect! I play guitar and sing Christian music, and volunteer 2 days a week at the VA Medical Center in Shreveport, LA. I sing and play at my small church in Haughton, LA and have 2 children (son and daughter) and 4 grandchildren 10, 8, 5 (girl) and 19 months). I nered someone to talk with who really understands this implications of our condition. Happy to meet you!
Blessed, and in His grip, Dan
Comments
Re: Hi, my name is Dan
Submitted by solis on Sun, 2006-03-12 - 00:11
Hi Dan,
Glad you dropped in :)
I think what you were trying to say is you have complex partial seizures. (complex = you have no awareness, & partial = you have only one side of your brain involved..your 'left' temporal lobe)
For info on temporal lobe epilepsy
http://www.epilepsy.com/epilepsy/epilepsy_temporallobe.html
While there, you might put temporal lobe epilepsy in the search engine to see what you find.
I know what you are going through as I have had left temporal lobe epilepsy for 49 years and just had surgery last January.
Best of luck & happy to meet you also
~sol
Re: Re: Hi, my name is Dan
Submitted by Bedge on Sat, 2006-10-14 - 01:39
Hi Dan,
I have TLE, and I have Complex Partial Sezuires. Although I don't black out. I'm wide awake through them (I would prefer to black out I think!! haha).
Nice to meet you! :o)
Re: Hi, my name is Dan
Submitted by emmy on Thu, 2006-03-09 - 12:57
Hi Dan, I too have no clue when i'm having seizures. I know how i feel, but after several years of having them, i still have not identified any aura giving me a heads up. One of the things that has changed is my spirituality. Previous regular church attender, scripture reader, a connected to God type of person. Now, no longer feel that way, although i have to trust that even though i don't 'feel' it, it's all the same and still there. Right now i'm hooked up to the 48 hour EEG test. I stayed away from meds and doctors for about 5 years, but now having extra difficulty, so finally went back. Sure enough they wanted to do tests. boring stuff. well, welcome, but i'm new too!