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help i am scared to go out.
Sun, 01/15/2006 - 14:33hi all i have developed epilepsy only six months ago because of another neurological condition called idiopathic intercraniel hyper tension.i have seizures at least three times a week and they are so scary .i get really confused and loose consciouness and also wet myself thats really embarrasing.i have lost alot of confidence and i feel i can not go outside especially by myself,please can anyone tell me if there are any steps i can take to gain my confidence back just a bit? thanks alot bevsx
Comments
Re: help i am scared to go out.
Submitted by txrhb1 on Sun, 2006-01-15 - 14:50
Hi Bev,
I am so sorry to hear of your struggles. I think you have taken a huge step in regaining some of your confidence by joining here. There are many wonderful, positive people that belong to this forum who understand what you are going through, and will encourage you daily in all that you do. Being afraid of having a seizure in public is a common fear for many of us.
Some ideas that might help:
1. Surround yourself with positive, helpful and caring people
2. Take small steps, and congratulate you on each step you take
3. Remember that you are still the same wonderful person you were before the diagnosis
4. Have a friend take you on small outings (make sure the friend knows the first aid steps for seizures)
5. Wear a medical alert bracelet for those times you are alone
6. Don't be too hard on yourself
7. Remember that you are not on this earth to live up to other's expectations, your life is your own and you are an individual, even without the epilepsy
I wish I had some really concrete answers for you, but I struggle with the same problem somewhat myself. I am making small steps everyday, and I am confident you will find a way to do the same.
I am so glad you are on this forum - I know you will make caring friends here.
((( hugs ))),
Barbie
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"We are each of us angels with only one wing, and we can fly only by embracing each other." -lucian de crescenzo
Re: Re: help i am scared to go out.
Submitted by bevs on Sun, 2006-01-15 - 15:06
thanks so much barbie it made me feel so much better after reading your kind words and advice ,small steps is the answer and you are so right sometimes amoungst all this medic stuff i tend to forget that i am still me .maybe together with many others we can help each other through the crazy times and share the good times thanks again ,tonight i can sleep better knowing that i am not alone,sloppy i know but true.huggles bevsx
Re: help i am scared to go out.
Submitted by Jarad on Thu, 2009-07-16 - 17:50
I think you should build your confidene by talking people online then after I think you will be litle able to do any thing.I am using wireless broadband to talk people and i got lot of confidence in this way.