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Givin' in
Thu, 03/30/2006 - 16:45So I broke down and called my neuro, waiting for a call back. I've waited these three weeks of endless buzz with the idea that if I call I will get more drugs - don't want em. But after today's activity, I am giving in and hoping there is a magic answer besides drugs, that it will be fixed and I can go on with my life as it should be. Here's to hoping!
Comments
Re: Re: Givin' in
Submitted by VanessaW on Fri, 2006-03-31 - 00:30
Dear T,
I can understand you not wanting more medication, sometimes my Phenobarbital wears me out. But on the other hand seizures are dangerous and I'm sure your doctor knows what is best for your type of seizure activity. Hang in there, I'm pulling for you. And as far as the repetitive speech, I worked at a hospital while I went to cosmetology school and many of the patients that were admitted on the floors I worked on suffered from epilepsy and actually many of them spoke as you described. I have not ever experienced that myself but like I said I know many people who have. I hope you will let me know what you and your neurologist decide to do and all my best to you.
Good luck,
Vanessa
Re: Re: Re: Givin' in
Submitted by T mama on Fri, 2006-03-31 - 09:08
Thanks Vanessa! I certainly need the encouragement. Today hasn't had much better of a start - still waiting for my doc to call. I am allergic to a few families of AED's so I am limited and I am so afraid of taking something new because last time I tried I landed myself in the hospital with a deadly allergic reaction, then months of steroids to prevent my throat from closing up, Did you know Lamictal can stay in the body for several months? Most of it filters out in a month but traces of it remain for a long time, and when you are allergic to it - that seems like forever! Anyway, blabbing. I am so frustrated today because my husband has been really busy at work - that time of year, budget prep and project completion etc. - We were supposed to go grocery shopping and run errands early in the week but haven't been able to yet, so now I am out of food and wipes and need to make good on some commitments and it doesn't look like that will happen today either, I hate being dependent. i don't want to have a bad attitude, it's not me, I am just having a bad week I guess, the idea that my szs are getting worse and I want to have more babies is very unsettling. Christine Jones, cjcurls, suggested a pink padded room to escape to, not a bad Idea, but mine would be blue like the ocean, with the sound of wind and water. Wish I could be there instead. :) Anyway, thanks Vanessa, for your words of encouragement!
Steph
Re: Givin' in
Submitted by T mama on Thu, 2006-03-30 - 16:46
BTW, has anybody ever experienced an episode where you say things and then the last word or two keep coming out over and over again? Like "Don't do that, do that, do that, that that that thatthatthatatatat? Very bazarre- I feel like I need to be in a psych ward.