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FREE CAKE! (just kidding) Would like your help if possible
Wed, 10/14/2015 - 09:51HI, I'm Leslie, 49, simple partial now after 10 years on and off tonic-clonic and partial complex seizures. (yayy Lamictal! & gabapentin!)
I am SO excited to be finishing my B.S. in psych and I will continue on to get a Master's at University of Maryland Baltimore.
I am asking a great favor from the community. I have chosen to write a paper about epilepsy and perceptual changes. I have an outline, enough (8-10) scholarly papers, and am going to use those use as my main sources. What I am asking of you is to respond, at any length--one sentence if you'd like--about your predominant perceptual changes. Everything is of course confidential, already is obviously. All I am asking is that I can contribute a few lines of anecdotal data. If you want to tell me to eff off that's fine too!
The reason I am doing this instead of just going through all the posts (which are a help also) is that I want a controlled set of respondents (doesn't matter which #s or which kind of seizures) though you would be self-selected random, it would be a managable cohort, and save me hours. Since I am also taking other classes time is at a premium.
If you want to tell me to eff off that's fine too!
With gratitude, and for all of you to have your health be managable,
Les
Each person has to make
Submitted by just_joe on Wed, 2015-10-14 - 14:20
Each person has to make changes as to how they do things. It makes no difference if they have a disease or not, People think I don't hear them when they talk to me. It isn't that I don't hear them it is I tune them out because I was on the phone and it was more important to make sure the customer was attended to since I was handling the executive appeals. I had to make changes in how I do thing in other ways. I cut my right hand rally bad. Like from the middle of my palm to the lower part of it under the little finger. Well the cut was bone deep and Doc actually tied the tendon to my little finger back before sewing it. So that finger doesn't always move like I want it to. Which also means I might have problems typing. It can land between keys. A person that wears glasses has to adjust how they look at things but once they are used to wearing and seeing with glasses everything is fine.With epilepsy I adjusted in several ways. I adjusted the way I did things because I never knew if or when I would have a seizure. I didn't know which kind of seizure I would have, After a period of time it went away because I said to hell with wondering and thinking if I have one I deal with it at that time.For some people changing shoes requires changes in how they walk. Perception lands in many areas.I hope this helps youJoe