Community Forum

Finding work

My first seizure happened when I was a sophmore in high school , I simply stared for a minute or so. People told me I replied and functioned normally but I couldn't remember anything that happened and what was simply staring stretched on forever in my mind.

However, I was misdiagnosed with psycho-analytical seizures and told that expensive therapy would help me eventually get over it. This continued for a year and the seizures got worse in frequency and the things that happened during one (I went from staring to drooling, screaming, convulsions and loss of bladder control). I got a job right away after I turned 16, but I was let go for perfectly understandable reasons. After seeking a second opinion I was finally diagnosesed with epilepsy.

I'm 20 now and with the number of seizures I have during the month, effects of medication, my own job experience and not being able to drive limiting my job options, is there any recommened places I can apply to? I want to help my parents, who have been nothing but supportive, with the costs of hospital stays, medication and now college loans.

I've heard of online jobs, but it's hard to find one that isn't just a scams. Is there some kind of referal site I could go to? Would an epilepsy support group be able to help me with employment?


Epilepsy Society in your area is helpful.  The college you went to can help if you live in that area.  Check the field of work you are interested in and send resumes.  My insurance company has online work people.  Check your city, county and state job lines.  They are equal opportunities.  I do not know what field of work you do for searching, but this is just off the top of my head.  Good Luck!

Can I ask what type of work people do online with an insurance company?

Can I ask the name of the insurance company? (I'm located in the Deep South)

All kinds of people work on line for insurance companies. I worked in a call center and we did work for many companies. I was on a AT&T project for 13 years. That was downsized because AT&T moved it inside and cell phones had lowered the number of residential 800#s. I was tehn mover to a Humana  program and did work on their medicare advantage plan. Some people were in provisioning an signed hte people up. Others took customer service calls which handled everything from finding doctrs i the area they  were in to finding out what medication they needed refilled. Or over riding a perscription because the day was close and they were goin out of towwn. Another project was for United health care which did the same thing as Humana.

There are some people in call centers who need IT people others build web pages. There is all kinds of work. The problem we have today is the economy is not where it  needs to be which is why there are fewer jobs being offered and the ACA didn't help much because businesses have cut hours down to below 29 hrs a week and their full time employees below 50. If they don't the government fines them.

I hope this helps but I have been looking for a jb for years now. I may just retire and take a part time job. Especially since I am one of those people considered a Baby Boomer.

Thanks for the input. If I was born 2 years prior, I would also be a Baby-Boomer. My thought was to approach hospitals with board members of Epilepsy Foundation on their staff. 

Who else would understand better? Possible jobs as transcribers, medical records, etc. If you have any suggestions on how to approach a hospital with specific job requests, please let me know. Two part-time jobs would be better than no job. I still don't have enough put away to retire on; will possibly be working to my mid-70's. 

Hi Ametz,

A complex partial seizure in my sophmore year in high school gave me unwanted notoriety with school
officials when a teacher I had already complained of raping me attacked me in class during the
seizure. My classmates told me I went stupid looking and started crunching up individual pages in
my notebook with one hand, then my teacher flipped my desk over and dragged me out into hallway by
my legs. When they followed us out into the hallway, he had my pants down and when he looked up at
them, he took off running down the hallway. I got up and took off running in the opposite direction.
I was isolated to library for the rest of the school year, and in the middle of my junior year, my
schooling was discontinued. The files involving this event were also used against me by the U.S. Department
of the Treasury when I filed an employment discrimination complaint against the IRS twenty years later with the Merit Systems Protection Board.

I had a few low paying legitimate jobs after leaving high school, but problems with partial seizures
brought each one to a short life. The best paying and longest lasting job was at a truck-to-railcar
reload facility managed by a guy who had just left the priesthood, but in about a year and half, we had
a major falling-out over the magazines left behind by the truckers. When he started making threats and
acting violently, I left and hit the streets on the West coast.

When I was lucky enough to have enough money to go to university, I used my parents' address, and
graduated magna cum laude a few years later. When I tried to get a job relevant to my degree (I got
told repeatedly that my degree disqualified me for lesser jobs!!!), aspects of my epilepsy were used
to refuse me the jobs. After talking my problems over with my former professors, I started filing
discrimination complaints against the federal agencies that used verifiable testing techniques.

My lawyer told me I would have to provide current medical verification of my epilepsy, but the county
offices refused medical services until I exhausted all of my rights with the Social Security
Administration and the State Rehabilitation Department.

Social Security told me I didn't work enough for Social Security myself, but that I worked too much to
be eligible under my parents' Social Security (since I was otherwise eligible with epilepsy through-out
my adulthood, because I had epilepsy while dependent on them before I worked too much). So my previous
working disqualified me for Medicare and Social Security Disability.

Using services of Medicaid and MediCruz, the State Rehabilitation Department decided that my epilepsy
was too severe for rehabilitation to result in any likelihood of the possibilty of the ability to engage
in any gainfull activity (i.e., getting and holding a job that pays something), and told me to get lost.

The Federal Courts refused to recognize State generated medical records, and told me I didn't have any
proof I was disabled and protected in any way as disabled under the law. The Federal Court of Appeals
for the 9th District told me I presented a very good legal oral argument to them, which they held as
evidence that I couldn't possibly be disabled under the Rehabilitation Act (ADA) without acceptable
medical evidence, ten legal years later, and threw my claims out.

Since my parents worked enough paying into Social Security to be eligible, I was also eligible as their
offspring with a disability before and during adulthood (which would have offset many burdens on my parents too),
so I lost my Medicare coverage, lost more than $70,000 in Social Security Disability payments, and lost
access to decent Rehabilitation Services by trying too hard to engage in gainful activities, which only
gave me a lifetime "categorically needy" status from epilepsy subject to endless State Budget Cuts.

3Hours i hope you pressed criminal charges against that teacher.

have you tried getting work at a different law firm that practices a different type of law, business law for instance, something where it's less hectic? or a disability law firm...hmm. good luck.

as for social security dept. i hear you. i filed for SSI mind you which according to the forms is supposed to allow one to work part time and receive assistance/ they never contacted my eliptologist @ the county to verify my condition and ruled i am not disabled. department of assistive and rehabilitative services was saying they would help me get a job whether or not i got SSI/then declined when SSI said im not disabled.hey i have epilepsy im not crippled! oh and they said if i applied for SSI then they can't help me get work cause its saying im disabled and can't work.

and if you have what they think is too much money of your own they don't want to help you either.

Hi 9LiveCat,

I didn't have opportunity to consider any attempt to timely press criminal charges. In fact, the school's administration threatened me with criminal charges. The large number of witnesses should have established occurrence, but.... Then, their polemics posed, included, was it consensual if not "fully" statutory (some laws back in the 1960's had the early teens & earlier (10 years of age?) as a major factor), the "history" of impairments exonerated most any attack (my large Becker's Nevus was held, more, or less, as granting everyone the right to sexually assault such a freak (most everyone seeing my nevus wanted to at least pet it)), not being fully conscious is established submission, and, who seduced whom??? This website censors any discussion more detailed about an epileptic's legal standing of "sexual consent" during time frames involving epileptic seizures.

Not many private businesses were subject to the federal Rehabilitation Act involving prohibited discrimination against handicapped individuals in the 1980's. As soon as my epilepsy became known to private employers, that was the end of employment opportunities with them (my resume had a 100% response rate as long as nothing about epilepsy was revealed). Federal employers were subject to the Rehabilitation Act, and my education and measured skills ranking repeatedly placed me near the top of all, or at the top of some, certificates of eligibles. For instance, one career field was in San Francisco as a Bank Examiner Trainee under the FDIC's Outstanding Scholar Program. As the starting trainee pay was too low to support any family (or even an individual well) near San Francisco, I was the only eligible available for positions left open because of the dearth of other willing outstanding scholars, and by federal employment rules, the agency was obligated to hire me, then fire me if epilepsy did prevent me from performing with reasonable accommodations. The agency refused to give me such opportunity, and the federal government refused to enforce its own employment laws, and instead, ruling that epilepsy is not a protected impairment/disability and that the effects of epilepsy necessarily disqualifies epileptics from the position and from the outstanding scholar program.

The notion that epileptics can only perform to lesser levels of accomplishment is erroneous, but still very widely pervasive (one judge told me that my epilepsy meant that I necessarily failed a test that was on record as me more than just passing (maybe it was back to the "too smart to be a cop" paradox of prejudice)). Boredom is more of a challenge with my neurological impairments than intellectual challenges are, and even in school, it was more difficult to maintain a slightly above average grade average, than it was to maintain being in the top 3% for grades in the university, as few university classes were as boring as school classes.

Social Security cancelled my hearing for SSI, once I appealed the State Rehab Department's letter of determination that my epilepsy was too complex for successful results (later, I filed suit against the State, too; that's were I got the paradox dumped on me that my epilepsy was not severe enough to be an ADA protected disability, but it was severe enough to be an SSI disability, and it is so severe as to be a disqualification from Rehab services). The Supreme Court refused my case a couple years before "CLEVELAND V. POLICY MANAGEMENT SYSTEMS CORP. (97-1008) 526 U.S. 795 (1999) 120 F.3d 513, vacated and remanded", and the decision wasn't retroactively applicable to all the previous Catch-22 cases and to my case of epileptic disabilities:
Cleveland Case:

To add insult to injury, the State Rehab & medical providers that "established" handicaps protected, were the ones that firstly demanded I apply for both SSDI & SSI to qualify for their services (that too, is the "LAW"). So, with the resources epileptics should use to engage more fully in life's major activities, gaining access to these resources will preclude the very same activities requiring such resources (on some of the cases audio tapes, you can hear the judges joke about some of this).

SSI was on my back 16 months ago, when an old life insurance dropped me for non-payment, but, as the IRS considers the insurance cashing in itself, to meet automatic ongoing premiums, as gainful income. My most recent hostile encounter from those with SSI administration, was over one social worker declaring that it was too dangerous for me to cook for myself, while the SSI social worker held that epilepsy posed no such danger with cooking to anybody. Medicaid medical care is most also never available with quality, much like the quality of care in jail:
(even here, instead of "let-em-die" faker strokes, the ten-fold-error of 10% rate for PNES is still being asserted as faking-it/mental-disorder instead of genuine epilepsy: ).


Our Mission

The mission of the Epilepsy Foundation is to lead the fight to overcome the challenges of living with epilepsy and to accelerate therapies to stop seizures, find cures, and save lives.

24/7 helpline