Community Forum Archive
The Epilepsy Community Forums are closed, and the information is archived. The content in this section may not be current or apply to all situations. In addition, forum questions and responses include information and content that has been generated by epilepsy community members. This content is not moderated. The information on these pages should not be substituted for medical advice from a healthcare provider. Experiences with epilepsy can vary greatly on an individual basis. Please contact your doctor or medical team if you have any questions about your situation. For more information, learn about epilepsy or visit our resources section.
EPILEPSY
Wed, 03/29/2006 - 16:51I CANT COMES TO GRIPS WITH HAVING A SEIZURE DISORDER. ALL MY FAMILY AND FRIENDS ASK ME HOW DID THIS HAPPEN. I'M 33 AND I'M SO UPSET THAT THIS HAS HAPPEN TO ME. I THOUGHT I WAS ALWAYS HEALTHY. I NEVER HAD THIS PROBLEM WHEN I WAS A SMALL CHILD I DON'T REMEMBER BEING SICK THAT MUCH. DO THEY CALL IT ADULT ONSET EPILEPSY FOR UNKNOWN CAUSE. SOMEONE PLEASE TELL ME WHAT TO EXPECT I HAVEN'T HAD A PASS OUT SEIZURE I'M ALWAYS WOKE AND I KNOW I'M HAVING ONE BUT AS LONG I TAKE MY MEDS WILL I HAVE A MORE SERIOUS SEIZURE
Comments
Re: Re: EPILEPSY
Submitted by Jana33 on Sat, 2006-04-01 - 20:48
THANK YOU FOR RESPONDING TO ME. I THINK THEY ARE JUST SCARE FOR ME I KNOW I'M STILL THE SAME PERSON. I'M JUST SHOCK THATS ALL AND A LITTLE CONFUSED.
Re: Re: Re: EPILEPSY
Submitted by Dan Marple on Sun, 2006-04-02 - 15:47
You're welcome. I find if I'm a bit confused or in distress I can try to relax and listen to some music. I also write my feelings in a personal diary. It clears my mind in preparation for a new day. It will be something you can get over with time. From what you say, it sounds like your family is expressing concern for you. I hope all goes well.
Re: EPILEPSY
Submitted by Dan Marple on Sat, 2006-04-01 - 19:57
I'm not sure why they call it Adult-onset epilepsy. But the way your family is responding should not to be to question as to how it happened. They have to respect that you have epilepsy and ask if there is anything they can help you with. Your epilepsy is not a definition of who you are! You are still the same bright healthy person who you were all your life! You may see some stigmatisation. But if you assert yourself and tell people you are uncomfortable with it they may respect you more. On the meds: you might want to ask your doctor what is the minimum level of meds you can take before they are out of therapeutic range. Sometimes having too much medication in your system can provoke seizures (I've had it happen!). I hope you get better soon!