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e and your non e's spouses or partners
Wed, 04/11/2007 - 01:52i have a major beef i need to get off my chest. my usually very supportive husband was off work today and helped me with some housework. later he had the nerve to say "see if you keep busy you wont have seizures." well i gave him a blank stare. i couldnt even think of a response. after a little whlie i told him that wasnt how seizures worked and he tells me "ok dr sylvia" i was furious. i had two grand mals on easter sunday, one while we were out. i had some partials i had noticed today. i know a lot more about e then he does, i live it every day, he down plays it every day, like my memory or using the wrong word or forgetting things or forgetting where i put something. he saays everyone does that. ok well maybe everyone does it on occcacon but we e's do it all the time. he says ive always done it, well duh!!! any suggestions out there? i am feeling so alone all of a sudden. he's the one thats to take care of me with my partials, complex partials, grande mals, generalized, or whatever. i am lost in a lost world of e.
Comments
Re: e and your non e's spouses or partners
Submitted by stevedj on Wed, 2007-04-11 - 08:54
banffgirl,
I'm sorry your other half isn't getting it at the moment. I'm glad to say I'm doing fine with mine. Your point of "i am lost in a lost world of e" though I can understand. I guess the point for me is often other people just don't get it, work colleges, friends and family. I once had a comment made by my-x and now a friend (hope she's not reading this) and she said epilepsy is a mental disorder and she couldn't understand why I got a little upset when she was saying "yes it is because it happens in the brain". I am not a Schizophrenic I'm thinking. Her wording was just a bit wrong but she just would not change her mind (not why I broke up with her by the way :-) ).
I think sometimes people without epilepsy just do not understand and you need to let it wash over you.
Best of luck,
Steve.
Re: e and your non e's spouses or partners
Submitted by jacky99 on Wed, 2007-04-11 - 09:59
I CAN'T BELIEVE HE WOULD SAY SOMETHING SO INSENSITIVE!!!! I'M APPALLED!!! Unfortunately people that don't have E don't actually know what we are going through. keeping yourself busy has nothing to do with anything. I had a seizure while driving! I think you should get your husband to do ALOT of research on this topic. Don't feel alone because that will just bring you down. There is always someone that you can talk to.
keep your stick on the ice. we're all in this together :P
Re: e and your non e's spouses or partners
Submitted by lisaltstheresa on Wed, 2007-04-11 - 07:28
It is so sad to hear what you have to go through with your husband. Would your husband go online or read a book and learn a bit about epilepsy? I would guess, NO. I would go online yourself, and get articles and just everyday hand him one so he can start learning about epilepsy the right way. Start with this site and just keep copy and paste. If he has an e-mail address send him the articles that way. Just tell him, if you love me enough you will start reading and learning about epilepsy. For you guys are in this together. You have to be, for you need the support. http://www.epilepsy.com/101/101_epilepsy.html You know I am not surprised. I bet there is alot of women or men out there, that deal with this issue. I was very lucky that my husband supported me all the way. I would send him articles once in a while to keep him up to date. For if I learned something that was very important, he would get it. I hope it works Lisa http://health.groups.yahoo.com/group/EpilepsyApproach1/ http://www.sleep-safe.co.uk/id90.htm