I am the mother of a 15yo with intractable partial and generalized epilepsy. We recently traveled to Mayo Clinic and, ultimately, got a recommendation to try IVIG.
Of course, we will do anything that will help her have the best life possible. Although after a month of treatment we're still not sure if it's working, we go forward at least for 2 more treatments.
But, whether it works or not, we have accrued $11,000 in out of pocket costs since March 1! We have an older son in college and one who will be headed there soon. Any suggestions for how to alleviate some of this burden? Unfortunately, the drug company has discontinued their co-pay assistance program.