Community Forum Archive
The Epilepsy Community Forums are closed, and the information is archived. The content in this section may not be current or apply to all situations. In addition, forum questions and responses include information and content that has been generated by epilepsy community members. This content is not moderated. The information on these pages should not be substituted for medical advice from a healthcare provider. Experiences with epilepsy can vary greatly on an individual basis. Please contact your doctor or medical team if you have any questions about your situation. For more information, learn about epilepsy or visit our resources section.
Drowning in medical bills from IVIG
Thu, 06/12/2014 - 08:56I am the mother of a 15yo with intractable partial and generalized epilepsy. We recently traveled to Mayo Clinic and, ultimately, got a recommendation to try IVIG.
Of course, we will do anything that will help her have the best life possible. Although after a month of treatment we're still not sure if it's working, we go forward at least for 2 more treatments.
But, whether it works or not, we have accrued $11,000 in out of pocket costs since March 1! We have an older son in college and one who will be headed there soon. Any suggestions for how to alleviate some of this burden? Unfortunately, the drug company has discontinued their co-pay assistance program.
I am so sorry about your
Submitted by Anonymous on Thu, 2014-06-12 - 16:39
I am so sorry about your predicament. I would suggest that you call the company that creates IVIG and ask for their suggestions and ask if they have any help to offer. I would also ask the same questions of MAYO. If I were the person making those calls I would write down what I had to say ahead of time to help me be as articulate as possible.[These would be hard calls for me to make.] And if I have any other ideas, you will be sure to hear from me. You have my concern and my best wishes, Susan W