Topic: Infantile Spasms & Tuberous Sclerosis

Created By: MayBabyParent | 2016-07-28 20:55 | 0 Comments

I know something is wrong with my daughter. She's 12 weeks old and has these spasms jerking movements. Multiple times a day, is there anyone I can text or email to get help and talk to who...

Created By: neverleavinsd | 2016-02-25 22:32 | 0 Comments

When my son Max was 4 months old he started having seizures. Hundreds every day. Infantile Spasms they were called. My husband and I were devastated! We had so many questions. We asked about his...

Created By: nicklsheridan74@gmail.com | 2015-03-25 21:47 | 0 Comments

My 6 month old daughter was diagnosed with Band heterotopia and has had multiple seizures since the diagnosis last week. They put her on Keppra but seizures increased. They increased the dose and...

Created By: Free Phoenix | 2014-05-21 17:15 | 0 Comments

My daughter was diagnosed with West Syndrome at 3 months in May 2013 and was given Sabril as the primary method of treatment.  We had tried the ACTH therapy but it was ineffective. In July 2013,...