Topic: Infantile Spasms & Tuberous Sclerosis

Created By: neverleavinsd | 2016-02-25 22:32 | 143 Views | 0 Comments

When my son Max was 4 months old he started having seizures. Hundreds every day. Infantile Spasms they were called. My husband and I were devastated! We had so many questions. We asked about his...

Created By: nicklsheridan74@gmail.com | 2015-03-25 21:47 | 575 Views | 0 Comments

My 6 month old daughter was diagnosed with Band heterotopia and has had multiple seizures since the diagnosis last week. They put her on Keppra but seizures increased. They increased the dose and...

Created By: vampireinitiation@gmail.com | 2014-11-02 01:22 | 652 Views | 0 Comments

I am from Canada, I was diagnosed of Epilepsy in 2004 then i was just 17years, the disease is so disgracing and embarassing because atimes i get seizure in public and fall to the ground, I have...

Created By: Free Phoenix | 2014-05-21 17:15 | 1004 Views | 0 Comments

My daughter was diagnosed with West Syndrome at 3 months in May 2013 and was given Sabril as the primary method of treatment.  We had tried the ACTH therapy but it was ineffective. In July 2013,...