Community Forum

Light My FIre Benefit

Hello, My name is Kayla and I work as a PCA at Children's. I am hosting a benefit on August, 1, 2014, to raise money for Camp Flame Catcher, which is a camp for kids with epilepsy. The benefit is to help send the kids to camp. It’s also a great way to meet people.
I started volunteering at the camp last summer. Now, I go anytime I have a chance. I think it’s a great experience that makes you look differently at yourself and life in general. All of the little things we take for granted, such as brushing your teeth, showering, getting dressed, or eating, we can do in a short amount of time or by ourselves. However, one of the kids could have one or multiple seizures in a short amount of time that could last seconds, minutes, or hours and make them sleep the rest of the time. Also, one of the biggest things we take for granted is having the chance to drive a car. Most of these kids can’t drive and rely on friends and family to get anywhere. It’s just amazing to see what these kids can do and accomplish considering what they go through. At summer camp, one of the counselor’s told me about one of the teens in her group that had been rock wall climbing. The teen made it to the top of the wall. She slipped a few times while climbing, but that is expected. When she came down, she said that she counted 7 or 8. The counselor asked her 7 or 8 what? She replied, “Seizures”. This teen had 7 or 8 seizures while climbing the rock wall, but still made it to the top.
I know I cannot help every family, but I would like to help as many as I can. The kids have a great time and feel comfortable around everyone, because they don’t feel like they are being judged or stared at when they have a seizure. It’s a place for them to feel normal and be carefree.
I am trying to spread the word to as many people as I can. I am also asking everyone to please feel free to share to help make this benefit a success. If anyone is not able to attend but are willing to donate they are more than welcome to. We are accepting cash donations or items to be entered into our raffle. All donations and proceeds from the raffle will go to Camp Flame Catcher, and a receipt will be provided for your records.
Please consider this opportunity to help these kids. If interested or need more information or Flyer, please contact Kayla Conroy at 513-284-7475 or email, so that I can make arrangements to give you the Tickets or pick up your donation at your convenience. Thank you for your support and consideration.
Light My Fire Benefit ( also on Facebook)
21 and older are welcome
8/1/14 @ 8pm-1am
Newport Syndicate
It is Cocktail Attire with a Fun / Loud Purple Accessory ( wig, big tie, socks, clown nose, big hat, or big glasses, etc.) to support Epilepsy. There will be a Music, Dancing, and Fun. We will have a photo booth, raffles, split the pot. There will be appetizers provided but you will need to pay for any drinks. You might even be able to win a chance to throw a pie in someone’s face. The Tickets are $35.00 for one person and $60.00 for two people. The ticket also counts as an entry to win a door prize..
Kayla Conroy

Our Mission

The mission of the Epilepsy Foundation is to lead the fight to overcome the challenges of living with epilepsy and to accelerate therapies to stop seizures, find cures, and save lives.

24/7 helpline