Topic: Fundraising and Awareness

Created By: TizzyWaggins | 2016-06-25 16:44 | 64 Views | 0 Comments

Hello,I am unsure how to go about this so i will give a little bit of info of my past and my current situation. I am a 23 year old female and I have had seizures a long time, they started when i...

Created By: skskinner92 | 2016-03-16 22:09 | 189 Views | 0 Comments

My name is Anthony Skinner and since November 2014 I have been struggling with a seizure disorder.  I had never neurological problems before and my dr still is not sure why I'm having...

Created By: PSezzy1681 | 2016-02-07 17:38 | 281 Views | 0 Comments

Hi to everybody out there.  I am making this post today to pass on some information about Amazon Smile.  I am sure many of us out there use Amazon.  Instead of using Amazon.com to make your...

Created By: fishermanfrench@gmail.com | 2015-11-18 00:40 | 286 Views | 0 Comments

hey everyone!

idk if this is allowed but at this point i dont know what else to do. 

On may 9th, 2015 dan was placed in a medically induced coma. This was done after having 13...

Created By: francesca37773 | 2015-11-17 11:00 | 259 Views | 0 Comments

Hello,

I’m a researcher working on an AI/Machine Learning project. Its aim is to help physicians in the prescription of the best therapy for each patient. We are trying to make the...

Created By: Ron Parvin | 2015-11-12 16:38 | 296 Views | 1 Comment

Hello my name is Ron Parvin. 

              Since I was 5 I've lived with epilepsy that only progressed into more severe seizures. For years Ive been trying to acquire a service dog but...

Created By: Ironchefcheyne | 2015-11-05 02:08 | 305 Views | 0 Comments

I'm working on a big project in starting a whole new movement in promoting epilepsy awareness in Hawaii, and possibly, nationwide. The Epilepsy Foundation of Hawaii executive director I feel isn't...

Created By: eccats18 | 2015-10-05 23:01 | 336 Views | 0 Comments
Created By: Tifftonyp | 2015-09-13 10:51 | 375 Views | 0 Comments

My daughter was 3 when she had her first grad mal. Then said she had generiallzed epilepsy. About 6 months ago she started to stare off. Just a month ago they said on top of generiallzed epilepsy...

Created By: marriedsubmariner@gmail.com | 2015-08-08 12:08 | 424 Views | 0 Comments

Throwing together a bit of an impromptu charity stream to raise money and awareness.

the link is www.twitch.tv/rngmobiusone. I will be going...

Created By: ccofer | 2015-05-08 07:43 | 496 Views | 0 Comments

If you live in Catawba County or Unifour Region of North Carolina, please consider stopping by Bojangle's next Thursday, May 14th, 5-8pm. Bojangles is donating 10% of proceeds to WNC Epilepsy...

Created By: RachelSproule | 2015-04-10 16:52 | 545 Views | 0 Comments

hey everyone I recently started a campaign called Making A Difference and it's an inspirational speaking campaign for topics like:

Mental health, bullying epilepsey self acceptance and...

Created By: Polygriz | 2015-04-03 22:23 | 577 Views | 0 Comments

For those of you living with or caring for someone with a seizure disorder, you'll understand when you see the video in our attached link.

My wife and I are hoping to raise funds to help...

Created By: padresconfuerzas | 2015-02-02 18:09 | 715 Views | 0 Comments

Hello friends, I am new to this and am ashamed but my 3 months was diagnosed epilepsy at 2 months, I've had to endure these past few weeks, I do live, my son the hospital where this has given you...

Created By: dritters | 2015-01-16 13:05 | 644 Views | 0 Comments

Hi 

I wanted to let people in NY and NJ know about the services provided by the Epilepsy Society of Southern NY.  We plan support group meeting for individual with Epilepsy and/or their...

Created By: beatit | 2014-12-09 21:00 | 723 Views | 0 Comments

Hi guys,

I'm currently in my second year of medical school, I have epilepsy and I'm involved in my school Neuroscience outreach program. There is a school district nearby that was hoping...

Created By: CQuindipan | 2014-11-13 15:16 | 720 Views | 0 Comments

If anyone is in the Sacramento area Dr. Chez (neurologist from Sutter Health) and a family speaker from the PCDH19 Alliance group will be giving a talk about epilepsy.  The event will be a dinner...

Created By: yorecent | 2014-11-09 13:10 | 757 Views | 0 Comments

I moved to Kansas City with a family member who has epilepsy. Back home, our local epilepsy foundation director was outstanding at helping people with epilepsy meet each other and create a support...

Created By: vampireinitiation@gmail.com | 2014-11-02 01:23 | 769 Views | 0 Comments

I am from Canada, I was diagnosed of Epilepsy in 2004 then i was just 17years, the disease is so disgracing and embarassing because atimes i get seizure in public and fall to the ground, I have...

Created By: bocefus1983@yahoo.com | 2014-10-26 23:51 | 810 Views | 0 Comments

I am 30 years old and have had seizures since I was a baby. I grew out of them after age 3, but they returned from about age 12 to age 15. After another 4 years passed, I began having them again...

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