A place for those who care for and about people with epilepsy - caring for yourselves as well as those around you.

Topic: Family & Friends

Created By: coworker | 2011-11-04 10:47 | 0 Comments

I was informed by my hiring manager that my Assistant (who I inherited as staff) has epilepsy and was embarassed about it, was not comfortable letting people know.

It is controlled w/...

Created By: moveyahbody | 2011-10-16 09:39 | 0 Comments

hello guys!

 

have you known someone who needs long term care due to epilepsy? my brother,49-year-old, is suffering the same...

Created By: SteveSmith | 2011-09-17 22:12 | 3 Comments

My thirty year-old girlfriend just had what looked very much like a grand mal seizure. Her older sister has epilepsy that came on at roughly the same age. My girlfriend has never had a grand mal...

Created By: dsaul01 | 2011-08-28 19:41 | 0 Comments

My child died from Epilepsy. The Medical Examiner said he was shocked to see how many people die of Epilepsy, yet he feels that most doctors, patients, parents do NOT take it as a life ending...

Created By: bgs | 2011-07-05 17:43 | 5 Comments

I was diagnosed with epilepsy 20 years ago; 5 years before I met my wife. I had 6 seizures the first year they diagnosed me. I have what the neurologist calls generalized seizure disorder which...

Created By: sspitz | 2011-06-30 17:28 | 3 Comments

Hi,

I'm new to this site and am engaged to my fiancee who is epileptic. A year ago she was taken off Topomax for Lamictal and was perfect. Now she's being weaned off of Keppra and on the...

Created By: kzumsteg | 2011-05-23 18:28 | 1 Comment

I have a quick question about auras, I know not everyone gets them.  But I am trying to help my son who is only 8 years old.  He doesn't understand about deja vu', but he does get what I thought...

Created By: dditizio | 2011-04-20 14:16 | 1 Comment

Caregivers:

 

Let me introduce myself and the company I work for.  My name is Danielle Di Tizio and I'm a Project Manager for MAXimum Research, a Marketing Research company...

Created By: MtGriz | 2011-03-29 13:13 | 0 Comments

I wanted to know if anyone has information on the effectiveness of helmets with drop seizures? Would a helmet be sufficient to help prevent further injuries if a gait belt is used presently? Is...

Created By: judyh | 2011-03-28 23:35 | 12 Comments

Hi,

I'm still looking for others with ULD. My daughter has it and we've never met another person with it. Please reply. We'd love to "talk" to  you. Thanks.

Judy

Created By: iforgot | 2011-03-09 05:43 | 0 Comments

If your new to Epilepsy be careful about the treatment you get & who your getting it from.
Show this document to your doctors if you can understand it after reading

here's the...

Created By: Ginny21 | 2011-03-07 11:38 | 0 Comments

Hello,

I am 32 and my mom has had epilepsy since right before I was born. My mom has always struggled with short term memory loss and as the oldest sibling I often had to take care of...

Created By: JaylasGrandma | 2011-03-02 22:47 | 0 Comments

Hi all. My almost 5 yr old granddaughter Jayla was diagnosed at 10 months with complex partial seizures. She has been on Keppra since and has had nothing other than...

Created By: zerokool26 | 2011-02-26 21:44 | 0 Comments

To give you a little back round on me. I started having epilepsy atthe age of13.  I really do anything with my live after finding out I had epilepsy. I diden't even really follow through...

Created By: mawmaw8 | 2011-02-25 23:18 | 0 Comments

Hi,Everyone  My name is Rennetta and my husband had right temporal lobe surgery in Oct of 2009. He has had some memory problems since then and was seizure free until recently.He gets really bad...

Created By: PVC316 | 2011-02-20 23:24 | 1 Comment

Hey Everybody,

Being a first time user on this site, and knowing practically nothing about epilepsy with the exception of basic first aid, I really need some help.

I'm 17 yrs old,...

Created By: Karen Hembree | 2011-02-08 16:40 | 3 Comments

I have been trying to help my brother since our mother's death. John has had epilepsy since he was 6 years old and is now in his 50's. I live two hours away and want to try to help John cope....

Created By: socogurl | 2011-01-13 14:27 | 2 Comments

My boyfriend has partial complex seizures that mostly occur when he's sleeping. Normally they are not an issue but lately, hes been having more and more during the night. I find myself worrying...

Created By: nicknzachsmom | 2011-01-06 15:47 | 0 Comments

Hi everyone, My name is Julie and I am new to this forum.  I am 40 years old and have been on phenobarbital since I was 17 years old. Besides the concern I have for myself and taking this med for...

Created By: wyboemail | 2010-12-15 15:53 | 0 Comments

Would like feedback from patients or family members of someone that was diagnosed with BRE and has been seizure free while being off meds for an extended period of time.

My son had his...

Pages